Readers will find that Ablon's use of first-hand information makes this an inestimably practical source. The author begins with a definition and description of dwarfism, and then probes the range of family responses to the birth of a dwarf. Successive chapters explore developmental and medical problems, school experiences, the social world of the dwarf child, and how the dwarf child fits into the family system. Next, the author describes Little People of America--a national organization committed to providing information on dwarfism. Finally, detailed life histories of three families with...
Readers will find that Ablon's use of first-hand information makes this an inestimably practical source. The author begins with a definition and de...
A description of the social, educational, and economic impact of living with a neurological genetic disorder, neurofibromatosis 1. The many unpredictable and potentially stigmatizing possible symptoms of NF1, which range from physical disfigurement to severe learning disorders, may have serious consequences in every aspect of daily life. NF1 was for many years wrongly diagnosed as the Elephant Man's Disease.
Ablon examines the psychosocial costs of this misdiagnosis and the ways in which stage, screen, and television parlayed The Elephant Man into the personification of the grimmist...
A description of the social, educational, and economic impact of living with a neurological genetic disorder, neurofibromatosis 1. The many unpredi...