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Between 1982 and 1993, Susan Sapsed kept a diary that is referred to throughout this book. She began this diary when she was 37 years of age, convinced that she was suffering from Meniere's disease (a disorder of the inner ear). Nearly 40 years later, Susan discovered the diary by chance. It told a story of personal illness, practitioner misunderstanding, patient frustration and familial loss. It was clear to the authors of this book that it could be used as a starting point for a meditation on patient power and powerlessness, and as an analytic comparison between healthcare systems at play...

Between 1982 and 1993, Susan Sapsed kept a diary that is referred to throughout this book. She began this diary when she was 37 years of age, convinced that she was suffering from Meniere's disease (a disorder of the inner ear). Nearly 40 years later, Susan discovered the diary by chance. It told a story of personal illness, practitioner misunderstanding, patient frustration and familial loss. It was clear to the authors of this book that it could be used as a starting point for a meditation on patient power and powerlessness, and as an analytic comparison between healthcare systems at play...