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Sickle cell disease(SCD) is a chronic inherited illness affecting about 300,000 infants born in Africa each year. Historically, over 95% of babies born with SCD in rural Africa died before 5 years old. In Kumasi, Ghana, where 2% of all babies born have SCD, the newborn screening programme has a survival rate to five years of over 95%. This book looks at fathers perceptions of the birth of a child with SCD and their role in the care of such children. Contrary to stereotypes suggesting fathers might abandon such children, the majority were involved in their welfare in terms of financial...

Sickle cell and thalassaemia are among the world's most common genetic conditions. They are especially common in Africa, Brazil, the Caribbean, the Middle East and Asia. They affect all ethnic groups but they particularly impact on minority ethnic groups in North America, Europe and Australasia. Much research has focused on clinical, laboratory and genetic studies of these conditions. Through a wide-ranging selection of readings based on social scientific research into sickle cell and thalassaemia, this book seeks to redress this imbalance. This is important as, through an examination of the...