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Das Buch bietet einen Uberblick uber die Umsetzung des danischen Modells der Konsensus-Konferenz in Deutschland am Beispiel der Gendiagnostik und beleuchtet die praktischen, wissenschaftlichen und gesellschaftlichen Aspekte der Burgerbeteiligung in der Bioethik-Debatte.Das Deutsche Hygiene-Museum veranstaltete im Herbst 2001 die erste bundesweite Burgerkonferenz: Streitfall Gendiagnostik. Eine 19-kopfige Burgergruppe verfasste uber einen mehrwochigen Meinungsbildungsprozess ein gemeinsames Votum zu den Chancen und Risiken der Gendiagnostik. In dem Buch werden die inhaltlichen Ergebnisse...

Recent debate about the ethical and regulatory dimensions of developments in genetics has sidelined societal and cultural aspects, which arguably are indispensable for a nuanced understanding of the complexities of the topic. Regulatory and ethical debates benefit from taking seriously this third dimension of culture, which often determines the configurations and limits of the space within which scientific, ethical and legal debate can take place. To fill this gap, this volume brings together contributions exploring the mutual relationships between genetics, markets, societies and identities...

This book is a comprehensive, empirically-grounded exploration of the relationship between bioethics, culture, and the perspective of being affected. It provides a new outlook on how complex "bioethical" issues become questions of everyday life. The authors focus on two contexts, genetic testing and end-of-life care, to locate and demonstrate emerging themes of responsibility, such as self-responsibility, responsibility for kin, and the responsibility of society. Within these themes, the duty to know versus the right not to know one's genetic fate (in the context of genetic testing), or the...