Wyniki wyszukiwania:

When is a human study ethical? For years, science and society have struggled with this question. Experts have put great effort into developing ethical principles and rules that adequately protect and respect volunteers in studies aimed at improving human health. But experts have missed something important. They have created a research ethics system without the help of people who know what it is like to be a research subject. This is a serious omission.

Experienced research subjects can make valuable contributions to research ethics. People who have been in studies have information about...

"You have cancer." Words no one wants to hear, but heard by millions every year. Millions more hear the equally shattering news that a loved one has cancer. Both are life-changing messages.

For the people writing this book, cancer was not only a personal crisis, it was also an education. Experts on medical ethics, personal experience with cancer showed them how little they understood of the real world of serious illness. Despite years of teaching and writing about treatment decision-making and patient autonomy, they were unprepared for many of the problems they faced. They discovered that...

Biomedical research today has a high public profile, largely because of patient advocacy. Following in the footsteps of HIV/AIDS activists, advocates representing an array of patient groups are now vocal partners in the research enterprise. Advocates want research practices and policies to be more responsive to the people who must live with the burdens of illness. This book shows how advocates have transformed health research, often -- but not always -- for the better.
Dresser is the first to examine patient advocacy through the lens of research ethics. She reveals the many ways in which...