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There was and is a great need for a bill of rights for all individuals who have a form of the disabling mineral metabolic disorder known as Periodic Paralysis. The Periodic Paralysis Network (PPN), inspired by the members of the 'Periodic Paralysis Network Support, Education and Advocacy Group' has now created 'A Bill of Rights For Periodic Paralysis Patients.' This booklet, the first in the PPN A.S.E.A. Series (Awareness, Support, Education and Advocacy), begins with an explanation of what a 'bill of rights' is and why they are written or created. 'A Bill Of Rights For Periodic Paralysis...

living with Periodic Paralysis is a must read for anyone suffering from the devastating effects of the mysterious disease called Periodic Paralysis. After nearly dying and after many years of misdiagnosis and mistreatment by medical professionals, Susan and Calvin uncover the cause of her illness. Based on a lifetime of experience and after nearly 3 years of experimentation, detailed research and tremendous study, they share their discoveries. living with Periodic Paralysis unravels the inherent mysteries of this rare condition.

This book will provide readers with information and methods to better manage the often over-whelming and disabling symptoms of all forms of Periodic Paralysis. The Periodic Paralysis Guide And Workbook: Be The Best You Can Be Naturally, is the second book written specifically about Periodic Paralysis, a very rare, usually inherited and often debilitating mineral metabolic disorder. It contains comprehensive information about the various forms of the condition written in an easy to understand format. It is a user-friendly guide, a set of plans, instructions and ideas for aiding individuals...

The author relates a poignant account of the life and death of her special daughter, Sandy, who was born with Sotos Syndrome, a rare genetic disorder.