The Connected Self: The Ethics and Governance of the Genetic Individual

ISBN-13: 9781107008601 / Angielski / Twarda / 2013 / 216 str.

Heather Widdows

Opis

Currently, the ethics infrastructure from medical and scientific training to the scrutiny of ethics committees focuses on trying to reform informed consent to do a job which it is simply not capable of doing. Consent, or choice, is not an effective ethical tool in public ethics and is particularly problematic in the governance of genetics. Heather Widdows suggests using alternative and additional ethical tools and argues that if individuals are to flourish it is necessary to recognise and respect communal and public goods as well as individual goods. To do this she suggests a two-step process the 'ethical toolbox'. First the harms and goods of the particular situation are assessed and then appropriate practices are put in place to protect goods and prevent harms. This debate speaks to core concerns of contemporary public ethics and suggests a means to identify and prioritise public and common goods."

Recenzje

'The richness of Widdows' analyses is clear. Her reflections and insights for genetic governance in The Connected Self should be recommended to emerging practitioners in genomics, law and/or health policy. No doubt, the book makes a valuable contribution to the movement towards a more inclusionary, reflexive and contextually embedded bioethics for genetic governance.' Vasiliki Rahimzadeh, Bioéthique Online (bioethiqueonline.ca)

Spis treści

1. The individual self and its critics; 2. The individualist assumptions of bioethical frameworks; 3. The genetic self is the connected self; 4. The failures of individual ethics in the genetic era; 5. The communal turn; 6. Developing alternatives: benefit sharing; 7. Developing alternatives: trust; 8. The ethical toolbox part one: recognising goods and harms; 9. The ethical toolbox part two: applying appropriate practices; 10. Possible futures.