Creating Conditions: The Making and Remaking of a Genetic Syndrome

ISBN-13: 9780415496650 / Angielski / Twarda / 2011 / 144 str.

Katie Featherstone;Paul Atkinson

Opis

This monograph is a contribution to the growing literature on genetic medicine. Based on original ethnographic research with scientists, clinicians and families, it uses the examination of one particular condition (Rett syndrome) to illuminate more general issues concerning the construction and interpretation of diseases and syndromes.

Spis treści

1. Multiple Sites of a Syndrome  2. Making Medical Entities  3. The Culture of the Clinic  4. The Transformation of Patienthood  5. Transforming Rett Syndrome  6. The Making and Re-making of Medical Classifications

O autorze

Katie Featherstone is Senior Lecturer within the Cardiff School of Nursing and Midwifery and a Research Fellow at Cesagen, Cardiff University. A sociologist of medicine, her recent ethnographic work includes an examination of the social consequences and clinical utilization of new genetic technologies, specifically within dysmorphology, a specialism of clinical genetics, and an examination of kinship and disclosure in the context of genetic information (The Wellcome Trust).

Paul Atkinson is Distinguished Research Professor of Sociology at Cardiff University. He is an Academician of the Academy of Social Sciences. Recent publications include Everyday Arias: An Operatic Ethnography and Contours of Culture, with Sara Delamont and William Housley. Together with Sara Delamont he edits the journal Qualitative Research. He is currently conducting ethnographic work in art-makers’ studios.