Bioethics and Disability: Toward a Disability-Conscious Bioethics

ISBN-13: 9780521110303 / Angielski / Twarda / 2011 / 386 str.

Alicia Ouellette

Opis

Bioethics and Disability provides tools for understanding the concerns, fears, and biases that have convinced some people with disabilities that the health care setting is a dangerous place and some bioethicists that disability activists have nothing to offer bioethics. It wrestles with the charge that bioethics as a discipline devalues the lives of persons with disabilities, arguing that reconciling the competing concerns of the disability community and the autonomy-based approach of mainstream bioethics is not only possible, but essential for a bioethics committed to facilitating good medical decision making and promoting respect for all persons, regardless of ability. Through in-depth case studies involving newborns, children, and adults with disabilities, Bioethics and Disability proposes a new model for medical decision making that is both sensitive to and sensible about the fact of disability in medical cases. Disability-conscious bioethics will bring together disability experts and bioethicists to identify and mitigate disability bias in our health care systems.

Recenzje

'… impressive … a worthwhile contribution to the field of bioethics and, hopefully, a model for people who are so struck by these thorny issues that they are likely to take up the challenge to be disability-conscious.' Theoretical Medicine and Bioethics

Spis treści

1. The struggle: disability rights versus bioethics; 2. Clashing perspectives and a call for reconciliation; 3. Infancy; 4. Childhood; 5. The reproductive years; 6. Adulthood; 7. The end of life; 8. Toward a disability-conscious bioethics.