The idea for this project was born out of a desire to document a real life experience within my family and is designed to raise awareness to the condition of albinism and impart and expose new knowledge about albinism and the related Hermansky Pudlak Syndrome. In the first ten years of my life all I knew was that two of my three my siblings had a lighter skin complexion than other members of the family. They had very poor eyesight and were prone to sunburn easily. Occasionally, they both had nosebleeds, which to a West Indian were attributed to the long periods spent in the sun. It was as a...
The idea for this project was born out of a desire to document a real life experience within my family and is designed to raise awareness to the condi...