Patient and caregiver understanding of treatment goals are influenced by differing clinical and socio-demographic features. Psychological morbidity was not associated with differing patient perception of the goals of treatment. Caregivers are confirmed as the third arm in the triad of care and a carefully described epidemiology profile assists to highlight the role of adult daughters as well as gender factors in spousal caregiving. The specialist was overwhelmingly the most important source of information in regard to illness for everyone, but a number of others provide information for...