In 2008, Simon Fitzmaurice was diagnosed with Motor Neurone Disease (also known as ALS). He was given four years to live.In 2010, in a state of lung-function collapse, Simon knew with crystal clarity that now was not his time to die. Against all prevailing medical opinion, he chose to ventilate in order to stay alive. Here, the young filmmaker, a husband and father of five small children, draws us deeply into his inner world. Told in simply expressed and beautifully stark prose in the vein of such memoirs as Jean-Dominique Bauby's"The Diving Bell and the Butterfly "the result is an...
In 2008, Simon Fitzmaurice was diagnosed with Motor Neurone Disease (also known as ALS). He was given four years to live.In 2010, in a state of lung-f...