A practical guide to carrying out ethical research with children and young people, this practical handbook examines the ethical questions that arise at each stage of research, from first plans to dissemination and impact. Illustrated with case studies from international and inter-disciplinary research, it offers advice for addressing each ethical question, issue or uncertainty.

This record from the 1980s offers useful historical comparisons with today’s paediatric cardiac services in both the remarkable progress over nearly 40 years and the continuing concerns.