Being diagnosed with a neurological disease is scary for children and their parents. How do you explain to a child what is wrong with them? This book is the answer. While the book contains explanations of the disease processes by a pediatric neurologist in easy-to-understand terms meant for children, the heart of the book are the essays written by the children themselves. The children were between seven and sixteen when they wrote the first essays, and fourteen years later, they discuss how their disease impacted growing to adulthood. These children frankly discuss that they want other...

Being diagnosed with a neurological disease is scary for children and their parents. How do you explain to a child what is wrong with them? This book is the answer. While the book contains explanations of the disease processes by a pediatric neurologist in easy-to-understand terms meant for children, the heart of the book are the essays written by the children themselves. The children were between seven and sixteen when they wrote the first essays, and fourteen years later, they discuss how their disease impacted growing to adulthood. These children frankly discuss that they want other...