The author relates a poignant account of the life and death of her special daughter, Sandy, who was born with Sotos Syndrome, a rare genetic disorder.
The author relates a poignant account of the life and death of her special daughter, Sandy, who was born with Sotos Syndrome, a rare genetic disorder....
There was and is a great need for a bill of rights for all individuals who have a form of the disabling mineral metabolic disorder known as Periodic Paralysis. The Periodic Paralysis Network (PPN), inspired by the members of the 'Periodic Paralysis Network Support, Education and Advocacy Group' has now created 'A Bill of Rights For Periodic Paralysis Patients.' This booklet, the first in the PPN A.S.E.A. Series (Awareness, Support, Education and Advocacy), begins with an explanation of what a 'bill of rights' is and why they are written or created. 'A Bill Of Rights For Periodic Paralysis...
There was and is a great need for a bill of rights for all individuals who have a form of the disabling mineral metabolic disorder known as Periodic P...