The true story of a person with an inherited connective tissue disorder. It wasn't until later in life that he found himself in a hospital emergency room where he discovered that he had congestive heart failure. He also learned that his disorder is referred to as Ehlers-Danlos Syndrome. This became a catalyst for two heart transplants and a kidney transplant. A compelling story of grit and determination for survival during many months at Stanford. * * * * "You made us look good." Dr. Norman Shumway, M.D., Stanford Surgeon* * * * * Once or twice in a lifetime we encounter the spirit of a giant...
The true story of a person with an inherited connective tissue disorder. It wasn't until later in life that he found himself in a hospital emergency r...