As a parent of a young adult with multiple anomalies since birth, the challenges presented by the professionals involved, and the many changes in the health condition as well as the transitional evolution to an adult provided the purpose for the development of this book and the hope if a transfer of care was necessary there would be a minimal break in the daily care with the medical information provided. It has insured the continuum of health of her son. The recordkeeping from a caregiver has provided invaluable information when a medical situation arose being available to share the...
As a parent of a young adult with multiple anomalies since birth, the challenges presented by the professionals involved, and the many changes in the ...