Sometimes Mommy Falls: A Book about Narcolepsy and Cataplexy

ISBN-13: 9781519132215 / Angielski / Miękka / 2015 / 24 str.

Mrs Amanda Jill Stock

Opis

The Talking to Kids about Narcolepsy series was written to help adults in a child's life talk to them about what the narcoleptic in their life goes through every day. Narcolepsy is hard enough to describe to other adults; trying to describe it to children sometimes feels impossible. "Mommy's brain is broken" or "Daddy wants to play with you but he is too tired" just doesn't cut it after a while. Cataplexy robs people of time they should be spending with their families and friends. It is heartbreaking looking into a child's eyes and telling them you are too tired to play with them. The sadness that comes over their little face is gut-wrenching. It's so hard to be tired all the time. How can a narcoleptic person put it into words that Narcolepsy not only hurts the child but hurts them too? The book also discusses how scary it can be for the family when a full Cataplexy attack happens. Even when a child knows what's going on it is always unsettling to see someone they love fall to the floor. This book is written in the voice of a child. The child in the story is telling her friend about his mother's Narcolepsy. It uses simple language and examples of how Narcolepsy and Cataplexy can effect a family in everyday life. There are follow up questions at the end of the story to help families talk about the material in the book and begin a meaningful discussion. Narcolepsy is not like in the movies. It's not randomly falling over and snoring comically. It's not a luxury to take naps during the day when the body requires it to function. This book and the rest in the series is meant to help educate and spread awareness This book should not be used in any way as a means to diagnose Narcolepsy or Excessive Daytime Sleepiness. Diagnosis of any medical condition should only be made by a licensed physician.

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