Management of Wilson Disease: A Pocket Guide

ISBN-13: 9783319915265 / Angielski / Miękka / 2018 / 250 str.

Michael L. Schilsky

Spis treści

1) Introduction to Copper Metabolism and Wilson disease

Uyen To, Michael L. Schilsky   

2) Diagnosis Confirmation and Screening of Wilson disease

Marinos Pericleous, Claire Kelly, Michael L. Schilsky

3) Treatment Options for Wilson disease

Claire Kelly, Marinos Pericleous, Michael L Schilsky 

4) Dietary Copper and Diet Issues for Patients with Wilson disease

Anne Marie Rivard 

5) Treating other Symptoms of Wilson Disease: The Liver 

Michelle Camarata, Michael L. Schilsky

6) Treatment of Neurological Symptoms in Wilson disease

Ana Vives-Rodriguez, Daphne Robakis, Nigel S. Bamford

7) Psychiatric Aspects of Wilson disease

Sahil Munjal, Paula C. Zimbrean

8) Monitoring Treatment of Wilson disease

Tamir Miloh, Michael L. Schilsky

9) Unique Pediatric Aspects of Wilson disease

Michelle Camarata, Regino P. Gonzalez-Peralta

10) Wilson disease: Special Circumstances 

Michelle Camarata, Michael L. Schilsky 

11) Liver Transplantation for Wilson disease

Tamir Miloh, Michael L. Schilsky

12) Partnering for Care of Wilson disease

Mary L. Graper, Michael L. Schilsky

13) Clinical Research Participation

Ricarda Tomlin

14) The Social and Emotional Impact of Wilson disease on Patients and Families

Lenore Hammers, Mary L. Graper

O autorze

Michael L. Schilsky, MD, FAASLD

Medical Director, Adult Liver Transplant

Yale New Haven Transplantation Center

Director, Center for Excellence for Wilson Disease at Yale

New Haven, CT

USA

Blurb

This pocket guide provides a concise yet comprehensive overview of the pathogenesis, treatment, and management of Wilson disease. Drawing upon expertise from the Center of Excellence at Yale University in liver disease, neurology, and psychiatry for adult and pediatric patients, as well as dieticians, clinical trial coordinators, representatives from the Wilson Disease Association and outside experts from the US and UK as well, this guide provides a balanced and easy to digest approach to understanding treatment and care for Wilson disease patients. The text reviews different treatment options and other care needed to address clinical symptoms, as well as the testing needed for monitoring efficacy and adherence. Furthermore, the volume discusses these issues in the context of a best care model, which is an integrative care model where patients and their caregivers partner with Centers of Excellence with expertise in this rare disorder, to achieve best long-term outcomes. 

 

Written by experts in the field, Management of Wilson Disease: A Pocket Guide is a valuable resource for clinicians and primary care physicians who treat patients with Wilson disease.