Case Studies in Neuropalliative Care

ISBN-13: 9781108404914 / Angielski / Miękka / 2018 / 186 str.

Maisha Robinson

Opis

This guide delivers problem-based scenarios in neuropalliative care; improving quality of life for patients with neurologic diseases.

Spis treści

List of contributors; Section 1. Palliative Care Principles: 1. The role of palliative medicine in neuropalliative care; 2. Common challenges in a palliative medicine consultation; 3. When is the right time to give up?; 4. A request for cognitive enhancement; 5. 'Doctor, how long does he have?'; 6. 'Will I walk again?' Prognostication in spinal cord compression; 7. Prolonged grief following the death of a spouse; 8. Mitigating bereavement risk following a sudden death; 9. 'I'm praying for a miracle'; 10. 'Should his devices be deactivated?'; 11. 'Is it time for hospice?'; Section 2. Cerebrovascular Diseases: 12. Temporary non-invasive ventilation in a do-not-intubate patient; 13. Stroke and end-stage heart failure; 14. Stroke and decompressive hemicraniectomy in a young patient; 15. Surrogate decision-making after a malignant MCA ischemic stroke; 16. A time-limited trial in a case of a basilar artery occlusion; 17. 'Mom never wanted a feeding tube'; 18. Painfully cold, numb, and weak: clinical characteristics and management of central post-stroke pain; 19. Shared decision-making for stroke patients; Section 3. Neurodegenerative and Neuromuscular Diseases: 20. Making a diagnosis with compassion in Parkinson's disease; 21. Caring for patients and families affected by advanced Parkinson's disease; 22. Cognitive decline in Parkinson disease; 23. Evolving goals of care as progressive supranuclear palsy progresses; 24. Psychosis and caregiver strain in Parkinson disease; 25. Constipation and Parkinson disease; 26. Keeping Mom home at the end of life; 27. 'I miss him already'; 28. The dynamic role of palliative medicine throughout the course of neuromuscular disease; 29. Considerations for non-invasive ventilation in neuromuscular disease; 30. Optimizing symptoms before a compassionate wean from the ventilator; 31. The case of a lost patch; 32. Dementia, delirium, and a distended bladder; Section 4. Neuro-Oncology: 33. 'I don't want to be a burden on my family'; 34. Palliative amputation for refractory pain; 35. Chemotherapy-induced peripheral neuropathy; 36. 'Two years may be too far away'; 37. Shifting the goals of care; 38. Management of seizures in patients with glioma from diagnosis through the end of life; 39. The burden of health care surrogacy in the absence of instruction; 40. 'But my brother should be treated'; 41. Taking flight at the end of life; Section 5. Pediatric Neurology: 42. Not another shunt revision; 43. Intrathecal baclofen for severe spasticity; Section 6. Demyelinating Diseases and Autoimmune Neurology: 44. Palliative care in multiple sclerosis: navigating chronic disease can be a difficult pill to swallow at a young age; 45. The perils of late advance care planning in multiple sclerosis; 46. Comparing and contrasting the approach to advance care planning in multiple sclerosis; 47. Comparing and contrasting the approach to advance care planning in multiple sclerosis; 48. Neuropsychological disturbances and fatigue in multiple sclerosis; 49. Pain and psychosocial symptoms in newly diagnosed neuromyelitis optica spectrum disorder (NMOSD); Index.