Decesaris, Al

For the past 10 years Al DeCesaris has been an advocate for his niece Jenna and all those suffering with Sturge-Weber Syndrome. Through charitable events and inspirational endeavors, he has created considerable awareness and raised significant funds to further the efforts to find a cure for this devastating neurological disorder. The positive effects of his efforts are far-reaching and have made a difference in the lives of individuals affected by Sturge-Weber Syndrome and have inspired others to help those in need. Al's crusade began in 2004 following the birth of his niece Jenna. Recognizing...