Ultra-Violet: One Girl's Prader-Willi Story

ISBN-13: 9781939418708 / Angielski / Miękka / 2014 / 82 str.

Debbie Frisk; Chelsea McCutchin

Opis

Estimated to occur once in every 15,000 births, Prader-Willi Syndrome is a rare genetic disorder that includes features of cognitive disabilities, problem behaviors, and, most pervasively, chronic hunger that leads to dangerous overeating and its life-threatening consequences. Ultra-Violet: One Girl's Prader-Willi Story draws on dozens of intensive interviews to offer insight into the world of a young girl with Prader-Willi Syndrome. For Violet, Prader-Willi Syndrome impacts everything from family and social relationships to education to her own self-image. But with the persistence of her parents and the help of experts, she will eventually discover not just how to live with Prader-Willi Syndrome-but how to live as Violet.