The Ethics of Genetic Screening

ISBN-13: 9789048151783 / Angielski / Miękka / 2010 / 256 str.

Ruth F. Chadwick; Darren Shickle; H. a. Ten Have

Opis

This volume is a multidisciplinary and multinational collection of papers on aspects of genetic screening, with special reference to the situation in Europe. Starting from the situation in practice, the book proceeds to examine what lessons, if any, can be learned from historical precedents and sociological perspectives and concludes by exploring the extent to which theoretical ethical frameworks can assist in addressing the practice and policy issues in screening. This exploration points to ways in which genetics itself affects and challenge those frameworks. This collection will be of interest to practitioners, ethicists and policy-makers alike.

Spis treści

Contributors. Preface. The Wilson and Jungner Principles of Screening and Genetic Testing; D. Shickle. Genetic screening, information and counselling in Austria; G. Hauser.The Belgian perspective on genetic screening; K. Dierickx. Thalassemia prevention in Cyprus. Past, present and future; P. Ioannou. Some developments in genetic screening in Finland; V. Launis. Genetic screening: Ethical debates and regulatory systems in France; A. Boué. Screening in Germany: Carrier screening, pre-natal care and other screening projects; T. Schroeder-Kurth. Population screening in Greece for prevention of genetic diseases; C. Metaxotou, A. Mavrou. Ethics and genetic screening in the Republic of Ireland; D. Dooley. Genetic screening in the Netherlands. The state of the debate; R. Hoedemaekers. Genetic screening and genetic services in Slovakia; V. Ferak. Historical and social background. Introduction; H. ten Have. From eugenics to genetic screening. Historical problems of human genetic applications; H.-P. Kröner. Genetics in Germany. History and hysteria; U. Wiesing. A sociological perspective on genetic screening; M. Levitt. Moral and philosophical issues. Introduction; R.F. Chadwick, U. Wiesing. Genetic information and care; I. Pörn. Genetic screening, genetic testing and privacy; J. Sandor. Reconciling liberty and the common good? Genetic screening in the Republic of Ireland; D. Dooley. Genetic screening and testing. A moral map; R. Hoedemaekers. The genetic testing of children; A. Clarke. Index.

O autorze

Henk A. ten Have studied medicine and philosophy at Leiden University, the Netherlands. He received his medical degree in 1976 from Leiden University and his philosophy degree in 1983. He worked as a researcher in the Pathology Laboratory, University of Leiden (1976-77), as a practicing physician in the Municipal Health Services, City of Rotterdam (1978-79), and as a Professor of Philosophy in the Faculty of Medicine and Faculty of Health Sciences, University of Limburg, Maastricht (1982-91). From 1991 he was a Professor of Medical Ethics and the Director of the Department of Ethics, Philosophy and History of Medicine in the University Medical Centre, Nijmegen, the Netherlands. In September 2003 he joined UNESCO as Director of the Division of Ethics of Science and Technology. In 2010 he was appointed as Director of the Center for Healthcare Ethics, Duquesne University, Pittsburgh.