The Ethics of Genetic Screening

ISBN-13: 9780792356141 / Angielski / Twarda / 1999 / 256 str.

Darren Shickle; Henk Ten Have; Ruth F. Chadwick

Opis

This collection of essays represents the work produced in the course of a three-year project funded by the Commission of the European Communities under the Biomed I programme, on the ethics of genetic screening, entitled 'Genetic screening: ethical and philosophical perspectives, with special reference to multifactorial diseases'. The short title of the project was Euroscreen, thereafter known as Euroscreen I, in the light of the fact that a second project on genetic screening was subsequently funded. The project was multinational and multidisciplinary, and had as its objectives to examine the nature and extent of genetic screening programmes in different European countries; to analyse the social policy response to these developments in different countries; and to explore the applicability of normative ethical frameworks to the issues. The project was led by a core group who had oversight of the project and members of which have acted as editors for this volume. Darren Shickle edited the first section; Henk ten Have the second; Ruth Chadwick and Urban Wiesing the third and final part. The volume opens with an overview of genetic screening and the principles available for addressing developments in the field, with special reference to the Wilson and Jungner principles on screening. The first of the three major sections thereafter includes papers on the state of the art in different countries, together with some analysis of social context and policy.

Spis treści

Contributors. Preface. The Wilson and Jungner Principles of Screening and Genetic Testing; D. Shickle. Genetic screening, information and counselling in Austria; G. Hauser.The Belgian perspective on genetic screening; K. Dierickx. Thalassemia prevention in Cyprus. Past, present and future; P. Ioannou. Some developments in genetic screening in Finland; V. Launis. Genetic screening: Ethical debates and regulatory systems in France; A. Boué. Screening in Germany: Carrier screening, pre-natal care and other screening projects; T. Schroeder-Kurth. Population screening in Greece for prevention of genetic diseases; C. Metaxotou, A. Mavrou. Ethics and genetic screening in the Republic of Ireland; D. Dooley. Genetic screening in the Netherlands. The state of the debate; R. Hoedemaekers. Genetic screening and genetic services in Slovakia; V. Ferak. Historical and social background. Introduction; H. ten Have. From eugenics to genetic screening. Historical problems of human genetic applications; H.-P. Kröner. Genetics in Germany. History and hysteria; U. Wiesing. A sociological perspective on genetic screening; M. Levitt. Moral and philosophical issues. Introduction; R.F. Chadwick, U. Wiesing. Genetic information and care; I. Pörn. Genetic screening, genetic testing and privacy; J. Sandor. Reconciling liberty and the common good? Genetic screening in the Republic of Ireland; D. Dooley. Genetic screening and testing. A moral map; R. Hoedemaekers. The genetic testing of children; A. Clarke. Index.

O autorze

Henk A. ten Have studied medicine and philosophy at Leiden University, the Netherlands. He received his medical degree in 1976 from Leiden University and his philosophy degree in 1983. He worked as a researcher in the Pathology Laboratory, University of Leiden (1976-77), as a practicing physician in the Municipal Health Services, City of Rotterdam (1978-79), and as a Professor of Philosophy in the Faculty of Medicine and Faculty of Health Sciences, University of Limburg, Maastricht (1982-91). From 1991 he was a Professor of Medical Ethics and the Director of the Department of Ethics, Philosophy and History of Medicine in the University Medical Centre, Nijmegen, the Netherlands. In September 2003 he joined UNESCO as Director of the Division of Ethics of Science and Technology. In 2010 he was appointed as Director of the Center for Healthcare Ethics, Duquesne University, Pittsburgh.