


ISBN-13: 9781786306951 / Angielski / Twarda / 2021 / 256 str.
ISBN-13: 9781786306951 / Angielski / Twarda / 2021 / 256 str.
Foreword xiDominique PON, Stéphane OUSTRIC, Jérôme BÉRANGERAcknowledgements xvIntroduction xviiJérôme BÉRANGER and Roland RIZOULIÈRESPart 1. The Health System and Digital Technology: Challenges, Issues, and Transformations 1Introduction to Part 1 3Roland RIZOULIÈRESChapter 1. Digital Integration and Healthcare Pathways in the Territories 5Roland RIZOULIÈRES1.1. Introduction 51.2. What lessons can be learned from integrated American and Swiss models? 81.2.1. The cradle: the United States 81.2.2. The Swiss model of the Delta network 131.3. Digital technology as a challenge for territorial integration in the context of healthcare in France 161.3.1. Healthcare territories: starting from the patient-user rather than from the offer of health and medico-social actors? 171.3.2. An exemplary structuring of the territory? The TSN program and the E-Parcours 201.3.3. What lessons can be learned? 231.3.4. PTAs and CPTS: the Alpha and Omega of healthcare territory structuring? 231.3.5. Launch of SNAC in regions 251.4. Digital integration and aging in France: from health pathway to life pathway 261.5. Conclusion 271.6. References 28Chapter 2. Digital Technology in a Cancer Patient's Primary-Secondary Care Journey 35Marie-Ève ROUGÉ-BUGAT2.1. Introduction 352.2. Organization of cancer care 362.2.1. Cancer plans 362.2.2. Primary care actors 362.3. Regional health organization for patient management 382.3.1. Healthcare supply 382.3.2. Transmission of information 402.4. Theoretical pathway of a cancer patient 412.5. Cancer announcement 442.6. Management of treatment-related adverse events 452.7. Patient follow-up 472.7.1. After cancer 472.7.2. Alternating monitoring 482.8. Ethics to support the primary to secondary care journey 492.8.1. Deontology 502.8.2. Ethical questioning 512.8.3. Impacts and consequences of digital technology on the healthcare pathway 522.9. Conclusion 532.10. References 54Chapter 3. A Smart Health Record for Better Coordination: A Sociological Analysis of the Organizational Dynamics of the Calipso Project 57Valentin BERTHOU3.1. Solving health problems through better coordination 573.1.1. A context conducive to home automation technologies in healthcare 573.1.2. A digital liaison notebook to facilitate the transmission of information 593.2. Historicity of the Calipso project 623.2.1. A bundle of information for thinking about the digital liaison notebook 623.2.2. Territorial anchoring of the project in an already established network of actors 633.3. Collaboration as an object of study and theoretical framework 643.3.1. A multidisciplinary team to carry out a project "in Living Lab mode" 643.3.2. What theoretical framework for dealing with complex situations? Knotworking, the core of reflection on the activity 663.4. Identifying specific coordination problems to propose a general technological solution 683.4.1. Building on problems identified in the field 683.4.2. A design for experimentation, functionalities for the needs of professionals 693.4.3. Through the projection of professional standards in the tool, misunderstanding of coordination and collaboration 703.4.4. Technology, neutral ground for cooperation? 723.5. Methodological course of the tailor-made experimental device 733.6. (Preliminary) results and conclusions 743.7. References 78Part 2. Digital Technology and Transformations in the Relationships between Professionals and Patients 81Introduction to Part 2 83Roland RIZOULIÈRESChapter 4. Use of AI Systems in the Care Relationship, Redefining Patient and Physician Roles 85Anthéa SÉRAFIN4.1. Progressive affirmation of individualized healthcare in the service of patient autonomy 864.1.1. Reinforcing the patient's responsibility in the healthcare relationship 864.1.2. Increasingly personalized medicine 914.2. Integration of digital and ethical concepts in the training of health personnel and in the education of citizens 934.2.1. Global challenge of developing citizens' digital skills 934.2.2. Issues specific to the training of healthcare professionals 964.3. References 100Chapter 5. Artificial Intelligence Ethics in Medicine 103Loïc ÉTIENNE5.1. Artificial intelligence in question 1035.2. The doctor-patient relationship 1065.3. Digital medicine ecosystem 1095.4. Medicine 4.0 1125.5. Question of ethics 1135.6. What lessons can be learned? 1155.7. Real benefits of artificial intelligence 1175.8. References 118Chapter 6. Digital and Public Health in West Africa 119Alpha Ahmadou DIALLO6.1. Introduction 1196.2. Context and questions 1206.3. Theoretical framework of analysis and associated concepts 1256.4. Practical illustrations 1286.5. Challenges and capitalization of experiences and potential for transformation 1346.6. Conclusion and lessons learned 1356.7. References 136Part 3. Supporting Digital Healthcare 139Introduction to Part 3 141Jérôme BÉRANGERChapter 7. Designing and Innovating in Digital Healthcare: Co-design for Taking Patients' Needs into Account 143Corinne GRENIER, Rym IBRAHIM and Susana PAIXÃO-BARRADAS7.1. Introduction 1437.1.1. New approaches to healthcare innovation 1457.2. Methodological approach of co-design in healthcare 1477.2.1. Co-design in healthcare 1477.2.2. A grid for analyzing the processes of co-design in healthcare 1487.3. Illustrations 1547.3.1. Service design workshops to envision collective and smart housing for the elderly 1547.3.2. Designing digital tools to improve the performance of athletes by taking their emotions into account 1597.4. Conclusion 1647.5. References 165Chapter 8. Ethical Governance and Responsibility in Digital Medicine: The Case of Artificial Intelligence 169Jérôme BÉRANGER8.1. Introduction 1698.2. Artificial intelligence applied to the world of healthcare 1708.3. Problems and ethical risks specific to digital technology 1728.4. Ethical and moral questions related to AI 1768.5. Framework based on general ethical principles associated with AI 1808.6. Algorithmic responsibility 1868.7. Conclusion 1878.8. References 189Chapter 9. Legal Focus on the Notions of Telemedicine and E-Health 191Lina WILLIATTE9.1. Introduction 1919.2. Telehealth: a different adoption depending on the country 1929.2.1. A word with different meanings in different countries 1929.2.2. E-health: a service provision 2009.3. Standard applicable to data 2019.3.1. General framework 2039.3.2. Rights of the data subject: founding principles of personal data processing 2059.3.3. The accountability principle 2079.4. Conclusion 2099.5. References 209List of Authors 211Index 213
Jerome Beranger is a scientific expert on the ethical approach of the digital revolution and Ethics by Evolution. He is a co-founder of ADELIAA and is also an associate researcher in the Inserm BIOETHICS team at the University of Toulouse III, France.Roland Rizoulières is a health economist, a lecturer at Sciences Po Aix, France, and a researcher at INSERM. He is also a senior commissioner at the Army Health Service (Army Epidemiology and Public Health Center).
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