Sex, Intimacy and Living with Life-Shortening Conditions

ISBN-13: 9781032243962 / Twarda / 2023 / 234 str.

Opis

This multi-disciplinary and inclusive collection brings together theoretically informed and empirically focused research on sex, intimacy and reproduction in relation to young people and adults with life-shortening conditions. 

Spis treści

 Part One:  Policy and regulation: National and international landscapes.  1.A changing population: Young adults with life-limiting or life-threatening conditions.  2.International policy and governance related to young adults with life-shortening conditions.  3.The regulation of sexual expression and joy: Complexities and contradictions.  4.British law, help or hinderance? Sexuality and disability.  5.A rite of passage? A UK perspective on transition for young people with life-shortening conditions.  Part Two: Experiences of sex, intimacy and reproduction.  6.Life-long learning about sex on an uncertain life course.  7.Reasons to shag a cripple.  8.Disruptions, relationships and intimate futures: The unintended consequences of pandemic control.  9.Near-death issues and the impact on the sexuality of people with intellectual disabilities during the pandemic.  10.Navigating normativity: Understanding reproductive loss in the lives of young adults with shortened lives.  Part Three: Reflections on researching sexual and reproductive intimacy.  11.Involving people with life-shortening conditions in research: Perspectives on co-production.  12.Research and governance in action: Implementing research on sex, intimacy and reproduction.  

O autorze

Sarah Earle is Professor of Medical Sociology at The Open University, UK. She is a medical sociologist with internationally recognised expertise in the sociology of reproductive and sexual health. Her inclusive research theorises the sexual and reproductive lives of under-researched or marginalized groups, exploring how this lack of agency impacts on everyday life and its meaning. She was a founding member and, later, Chair of The Open University Sexuality Alliance.

Maddie Blackburn is a retired lawyer and senior health professional, and a Visiting Fellow at the Open University, UK where she completed her PhD. Maddie was the founding Chair of The Open University Sexuality Alliance, was previously a Chief Executive at Iain Rennie Hospice at Home and Director of Children’s and Young People’s Strategy at the Healthcare Commission, now the Care Quality Commission.