Second Wind: Oral Histories of Lung Transplant Survivors

ISBN-13: 9780230340916 / Angielski / Twarda / 2012 / 298 str.

Mary Jo Festle

Opis

Many people have suffered from diseases that literally take their breath away. Second Wind relates the compelling stories of 'ordinary' Americans who sought a second chance through lung transplantation and the historical and socio-medical factors that affected them. Excerpts from oral history interviews reveal the physical and psychological challenges of deciding to pursue a transplant, waiting for a donor organ, and adapting to a new life with a lung from someone who died. Meaningful for those facing transplantation, their caregivers, scholars, and people outside the transplant community, Second Wind explores themes of uncertainty, timing, identity, coping, and quality of life.

Recenzje

'This book is a very interesting, extremely well-researched, and certainly timely history of the procedure of lung transplantation. At its heart are the oral histories and personal accounts of over 45 individuals who have undergone the procedure; their stories, and those of family members, surgeons, transplant coordinators, and donors are bookended by chapters explaining the various life-threatening lung conditions which create the necessity for transplant, the history of the surgical procedure, and the development of allocation policies and procedures for these scarce and fragile organs.' Marcia Meldrum, researcher and lecturer, UCLA Center for Health Services and Society

'Simply terrific: very polished, lively and accessible writing, fascinating stories (and well told) and compelling analysis, a great balance of detail and significance, strong grounding in multiple relevant literatures/fields.' Kathryn Nasstrom, associate professor of History, University of San Francisco

'Mary Jo Festle intertwines a fascinating history of lung transplantation with the recipient's perspective. The experience of recipients accurately portrays a range of outcomes. This history uniquely acknowledges the importance of a transplant community that has thrived since the rise of the Internet. Today's transplant recipients pay it forward by sharing their experiences with people who are waiting for a life-saving organ. Festle pays it forward by telling our story.' Kathryn Flynn, Double Lung recipient, March 25, 1996

Spis treści

Experience of End-Stage Lung Disease  Socio-Medical History of Lung Transplantation, 1963-2000 Making the Decision and Being Evaluated for Transplant  Waiting and Coping  Getting 'The Call'  Second Wind: Life after Transplant with a Donor Lung  Quality of Life after Transplant  Lung Transplants in the Twenty-first Century

O autorze

Mary Jo Festle is a professor of History at Elon University, where she teaches courses in recent U.S. History and Oral History. She is also the author of Playing Nice: Politics and Apologies in Women's Sports. Her brother Bob had a lung transplant.