Quality of Life and Well-Being for Residents in Long-Term Care Communities

ISBN-13: 9783031046971 / Miękka / 2023 / 195 str.

Kevin E. Hansen

Spis treści

Table of Contents

1  Quality of Life in Long-Term Care

1.1  Aging Demographics Across the Globe

1.2  Defining “Good” Quality of Life

1.3  Long-Term Care Communities

1.4  The Decision to Move into a Long-Term Care Community 

1.5  Influence of Quality of Life on Other Metrics

1.6  Enhancing Resident Quality of Life

1.7  Quality of Care vs. Quality of Life

1.8  Balance Between Safety and Autonomy

1.9  Resident-Defined Quality of Life

1.10  Quality of Life Domains

2  Resident Autonomy, Dignity, and Respect

2.1  Respect

2.2  Autonomy

2.3  Dignity

2.4  Sense of Purpose

2.5  Respect, Autonomy, Purpose, and Dignity in Residential Care Communities

2.5.1  The Golden Rule

2.5.2  Autonomy, Choice, and Control

2.6  Essential Influencers

2.6.1  Nurses and Nurse Aides

2.6.2  Social Workers and Admissions Directors

2.6.3  Activities Directors and Aides

2.6.4  Dietary Directors and Aides

3  Relationships with Other Residents, Staff, and Family Members 

3.1  Peer Relationships

3.1.1  Care Recipients are Unique

3.1.2  How Residents Develop Peer Relationships 

3.1.3  Potential Barriers to Peer Relationships

3.1.4  Facilitating Positive Peer Relationships

3.2  Resident – Staff Relationships

3.2.1  How Resident – Staff Relationships Develop

3.2.2  Optimizing Resident – Staff Relationships

3.3  Resident – Family Relationships

3.3.1  Family Member Roles

3.3.2  Facilitating Resident-Family Relationships

3.4  Romantic Resident Relationships 

3.4.1  Supporting Romantic Resident Relationships

3.5  Essential Influencers

3.5.1  Nursing and Direct Care Staff

3.5.2  Social Workers

3.5.3  Activities Director and Aides

3.5.4  Dining Staff

3.5.5  Volunteers

4  Activities and Religious Practices

4.1  Psychosocial Benefits of Activities

4.2  Frequency and Variety of Activities

4.3  Adapting Activities for Residents with Impairments

4.4  Religious and Spiritual Activities

4.5  Essential Influencers

4.5.1  Activities Director

4.5.2  Activity Aides and Volunteers

4.5.3  Social Workers

4.5.4  Therapists

4.5.5  Clergy

5  Environment and Surroundings

5.1  Use of Homelike Design Principles

5.1.1  Homelike and Hospitable Care

5.1.2  Resident Bedrooms

5.1.2.1  Privacy

5.1.2.2  Personal Belongings

5.1.2.3  Autonomy Over Personal Environment

5.1.2.4  Bathrooms 

5.1.3  Design of Communal Spaces 

5.1.3.1  Caregiver Workspace 

5.1.3.2  Living, Lounging, and Activity Spaces 

5.1.3.3  Kitchen and Dining

5.1.3.4  Shower and Tub Rooms or “Spas”

5.1.4  Environmental Comfortability 

5.2  Creating Safe and Functional Access to the Outdoors

5.3  Environmental Considerations for Residents with Dementia

5.4  Essential Influencers

5.4.1  Social Workers 

5.4.2  Maintenance Personnel

5.4.3  Nursing and Direct Care Staff

5.4.4  Activities Director

5.4.5  Dining Staff

6  Food and Dining

6.1  Aging Changes that Affect Food Consumption

6.2  Quality of Food and Menu Options

6.3  Modified Diets and Changes to Food Preparation for Resident Health Conditions

6.4  Improving the Dining Experience

6.5  The Dining Environment

6.6  Essential Influencers

6.6.1  Dieticians and Dietary Managers

6.6.2  Medical Director and Therapists

6.6.3  Dietary Aides

6.6.4  Nurse Aides

7  Quality of Care

7.1  Quality of Care

7.2  Intersection of Care and Quality of Life

7.3  Measuring and Assuring Quality

7.4  Providing Quality Resident Care and Therapy Services

7.5  Care Planning for Residents

7.6  Transfers Between Care Settings

7.7  Essential Influencers

7.7.1  Medical Director and Director of Nursing

7.7.2  Nursing Staff and Nurse Aides

7.7.3  Therapists and Service Staff

8  Summary, Policy Recommendations, and Conclusions

8.1  Care Recipients Should Direct Their Care

8.2  Administrators as Champions and Chief Influencers 

8.3  Organizational and Leadership Support

8.4  Opportunities for Government Licensure and Regulatory Agencies

8.5  The Imperative and Charge to Improve Resident Quality of Life  

O autorze

Jennifer Johs-Artisensi is Professor and the Academic Program Director for the Health Care Administration Program at the University of Wisconsin-Eau Claire, and Director of the National Emerging Leadership Summit. She has a master’s degree in public health and a Ph.D. in health psychology and behavioral medicine. She has worked as both a practitioner and a consultant in settings across the care continuum. Her research interests include resident-focused care, “culture change” and quality of life in long-term care, health care policy, health and long-term care management, health care administration education, and leadership development. In the USA, she has served the National Association of Long Term Care Administrator Boards (NAB), as Education and Continuing Education Committee Chairs for several years, and currently as Secretary of the NAB Executive Committee.  She developed an online preceptor training course for NAB, which is used nationwide.  She has earned several honors for both her research and service in long-term care, including several Distinguished and Best Paper awards for research on developing educational models to best prepare future long-term care administrators and delivering quality care. She has also received the Leon Brachman Award for Community Service, and faculty awards for excellence in service-learning, creativity and innovation, and outstanding teaching.

Kevin Hansen is Associate Professor and Chair of the Department of Health Care Administration and Public Health  at Bellarmine University. His research primarily focuses on quality of care and quality of life in nursing homes, as well as abuse and neglect of vulnerable adults and substitute decision-making with powers of attorney, health care directives, and guardianships and conservatorships. Dr. Hansen has taught courses related to health law and policy, quality improvement in long-term care organizations, leadership in health care settings, ethical and legal issues in aging, elder abuse and neglect, legal issues within health care administration, risk management in health care, and long-term care facility operations. Dr. Hansen has previously taught at the University of Wisconsin-Eau Claire and at the University of South Florida. He has worked as an attorney and ombudsman specialist with the Minnesota Ombudsman Office for Mental Health and Developmental Disabilities, and as an attorney and victim advocate at the ElderCare Rights Alliance. Kevin has worked in the areas of elder and disability law conducting research and pursuing legislative reform in Minnesota. Dr. Hansen earned his Ph.D. in Aging Studies from the University of South Florida, a Juris Doctor from the William Mitchell College of Law, and a Master of Laws in Elder Law from the Stetson University College of Law.

Blurb

This book explores key factors long-term care recipients have identified as impacting their quality of life and offers programmatic and policy recommendations to enhance well-being within long-term care communities. Leadership and staff who work in nursing homes and other residential care communities serve as gatekeepers to resident well-being, often without recognizing how residents’ quality of life is impacted by their decision-making. This book takes a life domain approach to build on research-based studies that document key drivers of care recipients’ quality of life, including relationships, autonomy and respect, activities and meals, environment, and care. Using a framework that enhances understanding of resident quality of life, it outlines practical, programmatic, and policy suggestions for long-term care stakeholders, such as administrators, managers, front-line staff, family members, and policy-makers, whose directives and actions impact the lived experience of long-term care residents. As such, this book serves as a roadmap for leaders and managers of long-term care communities, along with policymakers who regulate health and human services, to best structure care environments to maximize quality of life and well-being for long-term care recipients.