Quality of Life and Human Difference: Genetic Testing, Health Care, and Disability

ISBN-13: 9780521832014 / Angielski / Twarda / 2005 / 288 str.

David Wasserman; Jerome Bickenbach; Robert Wachbroit

Opis

The role of quality assessments in social policy, especially health policy, and ethical and social issues raised by prenatal testing for disability are discussed in this analysis. A theme of the literature has been the role played by controversial assumptions about the quality of life of people with disabilities. This book turns the perspectives of disability scholars to issues that have largely been the province of health methodology, policy and philosophy, while re-directing philosophical policy analysis to problems that have largely been the province of disability scholarship.

Recenzje

'… what is most interesting about this volume is that while addressing the central issues in the debate about disability and well-being, it sets this in a wider context of getting to grips with deeper theoretical issues … In addition to addressing the particular topic at hand this collection makes a contribution more broadly to bioethics. The material on measuring health versus well-being, for example, has significant implications for the endeavors in population genetic databases that are currently being advocated.' Ruth Chadwick, Lancaster University

Spis treści

Contributors; Acknowledgements; Introduction David Wasserman, Jerome Bickenbach and Robert Wachbroit; 1. Assessing quality of life: clinical versus health policy uses Robert Wachbroit; 2. Predicting genetic disability while commodifying health Anita Silvers; 3. Preventing genetically transmitted disabilities while respecting persons with disabilities Dan W. Brock; 4. Disability, ideology and quality of life: a bias in biomedical ethics Ron Amundson; 5. Values for health states in QALYs and DALYs: desirability versus well-being and worth Erik Nord; 6. Preventing the existence of people with disabilities Jeff McMahan; 7. Where is the sin is synecdoche? Prenatal testing and parent-child relationship Adrienne Asch and David Wasserman; 8. The social context of individual choice Tom Shakespeare; 9. Disability and health systems assessment Jerome Bickenbach; Index.