Principles and Practice in Biobank Governance

ISBN-13: 9781138276932 / Angielski / Miękka / 2016 / 316 str.

Mark Stranger; Jane Kaye

Opis

Rapid technological advances, the establishment of large-scale biobanks, and the exchange of data across international boundaries raise a variety of questions for regulators struggling with the problem of how to govern such stores of information and the processes connected with them. This truly international volume offers new insights from a range of disciplinary perspectives and will be essential reading for policy makers and scholars across a range of social sciences.

Recenzje

'From empirical data to conceptual analysis, and from assessment of public opinion to recommendations for policy, Kaye and Stranger have managed to pack a lot into this edited volume that will please researchers, policy makers and lay readers alike. It is a much needed collection that lives up to its offer to provide principles and practice for biobank governance.' Eric M. Meslin, Indiana University Center for Bioethics, USA 'The governance of biobanks is a major ethical issue of our time. This volume combines the latest empirical findings with an international blend of scientific, ethical, legal and sociological expertise, resulting in a comprehensive critique of current practice and focused suggestions for future development. Helpfully jargon-free, it should be a major resource for biobank planners, funders, administrators, users - and participants.' Alastair Campbell, National University of Singapore, Singapore

O autorze

Jane Kaye is Wellcome Trust Fellow in Medical Law at the Ethox Centre, University of Oxford, UK Mark Stranger has taught sociology and worked as Senior Research Fellow and Executive Director at the Centre for Law and Genetics, University of Tasmania, Australia. He is the author of Surfing Life: Surface, Substructure and the Commodification of the Sublime.