ISBN-13: 9783030318796 / Angielski / Miękka / 2021 / 413 str.
ISBN-13: 9783030318796 / Angielski / Miękka / 2021 / 413 str.
"The textbook is the first of its kind to offer guidance to healthcare professionals on caring for babies with life limiting conditions. ... Currently, no other textbook exists offering such guidance specifically for nurses and allied healthcare professionals." (ehospice.com, February 19, 2020)
Neonatal Palliative Care for Nurses
Alexandra Mancini, Jayne Price, Tara Kerr-Elliott
Dedication
Foreward
Preface
The Editors
Contributors’ list
Acknowledgements
NN Panel
Part I. Achieving Quality Nursing Practice in Neonatal Palliative Care
Chapter 1. Introduction to Neonatal Palliative Care
Neil Marlow*, Katie Gallagher
Corresponding author’s e-mail: n.marlow@ucl.ac.uk
Chapter 2. Exploring the Concept on Neonatal Palliative Care
Brian Carter, Amy Kuelbebeck*
Corresponding author’s e-mail:
Chapter 3. Support for Staff: Building Resilience in Nurses
Rachel Black*, Arlene Honeyman
Corresponding author’s e-mail: Rachelblack@orpheus.org.uk
Chapter 4. The Importance of Effective Communication on the Neonatal Unit
Corresponding author’s e-mail: paula.abramson@childbereavementuk.org
Chapter 5. Spiritual, Cultural and Religious Care for the Baby and Family
Revd Dorothy Moore-Brooks*, Tara Kerr-Elliott
Corresponding author’s e-mail: dorothy.moorebrooks@gosh.nhs.uk
Chapter 6. Ethical Concepts in Neonatal Palliative Care
Vicki Xafis*, Karen Brombley
Corresponding author’s e-mail: Vicki.Xafis@health.nsw.gov.au
Chapter 7. Legal Issues in Neonatal Palliative Care
Rebecca Fitzpatrick*, Ben Troke
Corresponding author’s e-mail: Rebecca.Fitzpatrick@brownejacobson.com
Chapter 8. The Principles of Genetics within Neonatal Palliative Care
Aoife Bradley
Corresponding author’s e-mail: aoife.bradley@belfasttrust.hscni.net
Chapter 9. Antenatal
Sam Collinge*, Elizabeth Bailey
Corresponding author’s e-mail: Sam.Collinge@uhcw.nhs.uk
Chapter 10. Care of Twins and Multiple Births and Support for the Family: a Detailed Background
Claire Campbell
Corresponding author’s e-mail: Claire.campbell@nuth.nhs.uk
Chapter 11. Care of Twins and Multiple Births and Support for the Family: the Butterfly Project
Nicholas Embleton*, Sarah Stephenson
Corresponding author’s e-mail: Nicholas.embleton@newcastle.ac.uk
Chapter 12. The Decision-Making Process and the Role of the Neonatal Nurse
Katie Gallagher*, Lisa Leppard
Corresponding author’s e-mail: katie.gallagher@ucl.ac.uk
Chapter 13. Advance Care Planning
Jonathan Downie*, Tara Kerr-Elliott, Finella Craig
Corresponding author’s e-mail: jonathan.downie@nhs.net
Chapter 14. Organ and Tissue Donation within Neonatal Palliative and End of Life Care
Angie Scales
Corresponding author’s e-mail: angie.scales@nhsbt.nhs.uk
Chapter 15. Continuing Emotional and Practical Support for the Whole Family
Anne Harris
Corresponding author’s e-mail: anne.harris@rainbowtrust.org.uk
Chapter 16. Fundamental Principles of Effective Symptom Management in Neonatal Palliative Care
Linda Maynard
Corresponding author’s e-mail: linda.maynard@each.org.uk (found via Google, to be confirmed)
Chapter 17. Collaboration between Neonatal Units and Children’s Hospices – Exploring Opportunities for Potentially Improving Care and Offering Choices
Corresponding author’s e-mail: j.e.price@sgul.kingston.ac.uk
Chapter 18. Interdisciplinary Working in Neonatal Palliative Care
Patricia McNeill*, Jacqueline Johnstone, Frances Gilmore
Corresponding author’s e-mail: p.mcneilly@qub.ac.uk
Chapter 19. Developing Knowledge and Competence in Neonatal Palliative Care Practice
Sharon Nurse*, Julie Ling, Valerie Peacock
Corresponding author’s e-mail: s.nurse@qub.ac.uk (found via Google, to be confirmed)Chapter 20. Care of the Baby after Death and Family, and Focus on Post Mortem Examination
Rachel Black*,Tara Kerr-Elliott, Lydia Judge- Kronis, Neil Sebire
Corresponding author’s e-mail: docrachelblack@gmail.com
Part II. Achieving Quality in Neonatal Palliative Care Internationally
Chapter 21. Introduction
Joan Marston
Corresponding author’s e-mail: joan.icpcn@gmail.com
Chapter 22. Australia
Victoria J. Kain
Corresponding author’s e-mail: v.kain@uq.edu.auChapter 23. Kuwait
Tracie Dempster
Corresponding author’s e-mail: tracie.dempster@bacch.org
Chapter 24. India
Mary Ann Muckaden
Corresponding author’s e-mail: muckadenma@tmc.gov.in
Chapter 25. Malaysia
Corresponding author’s e-mail: leeailah@yahoo.com
Chapter 26. South Africa
Julia Ambler
Corresponding author’s e-mail: julia@umduduzi.co.za
Chapter 27. Ireland
Claire Quinn*, Marie Lynch
Corresponding author’s e-mail: claire.quinn@nuigalway.ie
Chapter 28. The Netherlands
Corresponding author’s e-mail: a.a.e.verhagen@UMCG.nl
Chapter 29. Germany
Ulrike Lindwedel-Reime, Sabine Kraft*
Corresponding author’s e-mail: kraft@bundesverband-kinderhospiz.de
Chapter 30. Singapore
Majella Irudayam*, Lim Sok Bee, Rahimah Bte Bujal, Ann Toh
Corresponding author’s e-mail: majella.irudayam@kkh.com.sg
Chapter 31. Ukraine
Andrey Penkov
Corresponding author’s e-mail: andrey_penkov@mail.ru
Chapter 32. Argentina
Rut Kiman
Corresponding author’s e-mail: rkiman@gmail.com
Chapter 33. Italy
Chapter 34. Scotland
Corresponding author’s e-mail: EvelynRodger@chas.org.uk
Chapter 35. France
Dr Pierre Bétrémieux
Corresponding author’s e-mail: pierre.betremieux35@gmail.com
Support Organisations
Index
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