Life After a Rare Brain Tumour and Supplementary Motor Area Syndrome: Awake Behind Closed Eyes

ISBN-13: 9780367085421 / Angielski / Miękka / 2019 / 158 str.

Alex Jelly;Adel Helmy;Barbara A. Wilson

Opis

This book offers a personal insight into the experience of Alex Jelly, a professional fundraiser who developed a rare brain tumour, a papillary meningioma, which was successfully removed. She was left with Supplementary Motor Area Syndrome and associated problems including motor and speech impairments and a temporary psychosis. Discussing Alex's struggles and triumphs throughout her rehabilitation this book offers an honest account of her journey from diagnosis to recovery. Part One introduces Alex's early life and employment, symptom onset and diagnosis, treatment and rehabilitation. Part Two presents her neurosurgeon, Adel Helmy, and a clinical neuropsychologist, Barbara A Wilson. Adel provides a medical context by explaining Alex's successful surgery and her post-operative experience. Finally, Barbara concludes with a comprehensive view of Alex's recovery and gives a voice to the therapists and psychologists who worked with Alex throughout her in and outpatient rehabilitation journey. This book provides support, understanding and hope for patients who have suffered a brain tumour and their families. It is valuable reading for any professional involved in neurorehabilitation, clinical neuropsychology students and those touched by brain injury.

Recenzje

'This remarkable book shares Alex’s lived experience of a rare type of meningioma and the perplexing effects that dramatically altered her sense of reality and control over her thoughts, behaviour, speech and body. Part I charts her journey spanning life prior to the illness, symptom onset and diagnosis, treatment, experience of psychosis, rehabilitation and adjustment to the new normal. Part II is written by a leading neurosurgeon and a world-renowned clinical neuropsychologist and provides the clinical context for understanding Alex’s illness and the rehabilitation that was integral to her recovery. Over time, Alex has managed to put the pieces of the puzzle together to find meaning in her illness with the support of family, friends and professionals. This beautifully written, candid and touching account will appeal to other people and family members affected by neurological conditions and cancer, and will inspire anyone facing major life challenges.' - Tamara Ownsworth, School of Applied Psychology, Griffith University, Australia