Intellectual Disabilities: Health and Social Care Across the Lifespan

ISBN-13: 9783031274954 / Angielski

Fintan Sheerin; Carmel Doyle

Opis

This textbook provides nurses, allied health and social care professionals with the background knowledge necessary to support individuals with intellectual disabilities and their families. It is a unique and viable resource which is particularly timely, as recent decades have seen a significant change in the demographics and associated care and support needs of this population.The textbook is laid into four sections to provide a logical structure for the content with chapters developing key topic areas relevant to the field. The introductory section sets the overall context for the book and considers the importance of developing an understanding of intellectual disability as a core concept identifying philosophies and models of service that underpin health and social care across the lifespan. Communication as a basis for caring and the overall concept of person-centred caring in a multidisciplinary context is considered. The second section explores key concepts from birth to adulthood exploring the nature of intellectual disability, the child with intellectual disability and other related neurodevelopmental conditions. The third section explores adulthood to older age and considers specific health care needs, understanding behaviour and other fundamental concepts including mental health, ageing and palliative care. The fourth and final section explores the integration of health and social care addressing such issues as supporting and enabling families, education, employment, and sexuality and relationships. Edited by experienced and widely respected professionals, this textbook is written by international practitioners, educators and researchers who all play critical roles in working with individuals with intellectual disability and their families.

Spis treści

Introduction

Fintan Sheerin, Trinity College Dublin, Ireland.

Carmel Doyle, Trinity College Dublin, Ireland.

Section 1: Introduction to Key Concepts

Chapter 1: Foundations of Intellectual Disability

Ruth Northway, University of South Wales, United Kingdom.

Edward Oloidi, University of South Wales, United Kingdom.

Chapter 2: Communication as a Basis for Person-Centred Support

Anne-Marie Martin, University College Cork, Ireland.

Victoria Jones, Aderdare, Wales, United Kingdom.

Chapter 3: Care in a Multi/Interdisciplinary Context

Aud Elisabeth Witsø, Norwegian University of Science and Technology, Trondheim, Norway.

Mary-Anne Donovan, Centre for Disability Studies and University of Sydney, Sydney, Australia.

Chapter 4: Attachment, Cognitive Dissonance and Reciprocation in Intellectual Disability Care Provision

Jan de Vries, Trinity College Dublin, Ireland.

Eimear McGlinchey, Trinity College Dublin, Ireland.

Section 2: From Birth to Adolescence

Chapter 5: The Nature of Intellectual Disability

Lynne Marsh, Queen’s University, Belfast, Northern Ireland, United Kingdom.

Paul McAleer, Queen’s University, Belfast, Northern Ireland, United Kingdom.

Chapter 6: Children and Adolescents with Intellectual Disability

Carmel Doyle, Trinity College Dublin, Ireland.

Neil Kenny, Dublin City University, Ireland.

Chapter 7: Intellectual and Developmental Disabilities and Rare Diseases

Suja Somanadha, University College Dublin, Ireland.

Norah Johnson, Marquette University, Milwaukee, USA.

Anne Lalor, Ireland.

Chapter 8: Other Neurodevelopmental Conditions

Caroline Dalton O’Connor, University College Cork, Ireland.

Helena Isabel da Silva Reis, Politechnico de Leira, Portugal.

Section 3: From Adulthood to Older Age

Chapter 9: Chronic Health Among Those with Intellectual Disability

Eilish Burke, Trinity College Dublin, Ireland.

Alyt Oppewal, Erasmus Medical Centre, Netherlands.

Dederieke Maes-Festen, University Medical Centre Rotterdam, Netherlands.

Máire O’Dwyer, Trinity College Dublin, Ireland.

Chapter 10: Ageing and Intellectual Disability

Philip McCallion, Temple University, Pennsylvania, USA.

Mary McCarron, Trinity College Dublin, Ireland.

Chapter 11: Intellectual Disability, Mental Health and Mental Disorders

Sandra Fleming, Trinity College Dublin, Ireland.

Carlos Manuel Peña Salazar, San Joan de Deu, Barcelona, Spain.

Section 4: Integrating Health and Social Perspectives

Chapter 12: The Social Contract of Care for People with an Intellectual Disability

Damien Brennan, Trinity College Dublin, Ireland.

Maureen D’Eath, Trinity College Dublin, Ireland.

Chapter 13: Enabling Families to Support Adults with an Intellectual Disability to Live a Life of their Choosing

Darren McCausland, Trinity College Dublin and Stewarts Care, Ireland.

Mary Anne O’Donovan, Centre for Disability Studies and University of Sydney, Sydney, Australia.

Chapter 14: Social Integration and Inclusion

Maria Paiewonsky, University of Massachusetts, Boston, USA.

Annie Gomes, State University of Rio de Janeiro, Brazil.

Kerry Watson, Department of Education and Training, Victoria, Australia.

Chapter 15: Supporting Transitions

Michael Brown, Queen’s University, Belfast, Northern Ireland, United Kingdom.

Juliet McArthur, NHS Lothian and University of Edinburgh, Scotland, United Kingdom.

Chapter 16: Sexuality, Gender Identity and Relationships

Jessica Mannion, Atlantic Technological University, Sligo, Ireland.

Fintan Sheerin, Trinity College Dublin, Ireland.

 

O autorze

Dr Fintan Sheerin, PhD MA BSc PgDipEd RNID RGN RNT FEANS FNI MRSB, is Associate Professor in Intellectual Disability Nursing and Head of the School of Nursing and Midwifery at Trinity College Dublin, where he has taught for 16 years. He worked for more than 20 years across a variety of health and social care settings, as well as with refugees and rural communities in several countries. His research has been informed by these experiences and largely focusses on engagement, rights, mental health and well-being, seeking to address the issues which impact these. His current work is primarily related to supporting the mental health of older people with intellectual disability and is linked to his role as mental health lead for the Intellectual Disability Supplement to the Irish Longitudinal Study on Ageing (IDS-TILDA). He has published widely, spoken at many international conferences, and is co-author of one book, Leadership for Intellectual Disability Service: Motivating Change and Improvement (2019) and contributed to several others. He is a Fellow of the European Academy of Nursing Science and of NANDA International. 

 

Dr Carmel Doyle, PhD MSc BSc PgDip CHSE RNT RNID RCN, is an Assistant Professor in Nursing and currently Head of Intellectual Disability Nursing at Trinity College. Her research and teaching reflects her interest in the areas of intellectual disabilities and children’s nursing. She has clinical experience in both areas and has been in higher education for 18 years. Her specific area of experience is in the care of children with severe and profound intellectual disabilities and complex care needs. She has completed several funded research projects in the field adopting a variety of research methods. She has collaborated with key stakeholders and has developed a strong network with national disability service providers. She has several publications and has also received funding nationally and internationally. She has completed a PhD in the field of ‘giving medicines’ to children with intellectual disability. Her research-based commitments include supervision of students undertaking research to PhD level. She is co- chair of a health service provider research ethics committee, has completed external examiner roles at other Universities and is also an educational consultant for Special Olympics Ireland. She has published internationally and is a co-author of the book Intellectual Disability Nursing: An Oral History Project, Emerald Publishing (2020). As Head of intellectual disability nursing, she leads on developments in the discipline and sector from both education, policy development and research perspectives.