Hospice Palliative Home Care and Bereavement Support: Nursing Interventions and Supportive Care

ISBN-13: 9783030195342 / Angielski / Miękka / 2019 / 280 str.

Holtslander, Lorraine

Opis

This book provides a unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike. The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the "Finding Balance Intervention" for bereaved caregivers; the "Reclaiming Yourself" tool for bereaved spouses of partners with dementia; and the "Keeping Hope Possible" Intervention for families of children with life limiting and life threatening illnesses. The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach. The book will benefit nursing students, educators and practicing registered nurses by providing information, theory, and evidence from research.

Spis treści

Chapter 1.  Overview of Hospice Palliative Care in a Community and Home Setting (theoretical and conceptual models, populations, ages, diseases, transitions, bereavement support) 
Lorraine Holtslander, Shelley Peacock and Jill Bally

Chapter 2. The Formal Caregiver Perspective
Kelly Penz

Chapter 2. Global Perspectives from the UK
Agatha Ogunkorode, Lize Maree, Rhoda MacRae, Margaret Brown, Debbie Tolson, Mary Ellen Walker

Chapter 3. The Family Caregiver Perspective 
Sherrill Miller 

Chapter 3. Global Perspectives from Europe
Agatha Ogunkorode, Lize Maree, Rhoda MacRae, Margaret Brown, Debbie Tolson, Mary Ellen Walker

Chapter 4. Global Perspectives: Nigerian Context
Agatha Ogunkorode

Chapter 5.  Palliare (UK/Europe)
Elaine Stevens, Stuart Milligan

Chapter 6. Global Perspectives from Canada 
Chad Hammond, Sharon Baxter

Chapter 7. Global Perspectives: New Zealand
Karyn Bycroft, Rachel Teulon

Chapter 8. Global Perspectives: US
Cindy Tofthaghen

9. Global Perspectives: Conclusions
Mary Ellen Walker

Chapters 10. Finding Balance
Lorraine Holtslander

Chapter 11. Keeping hope possible
Jill Bally, Meridith Burles

Chapter 12. Reclaiming Yourself
Shelley Peacock, Melanie Bayly

Chapter 13. Living with Hope
Wendy Duggleby

14.COPE intervention for caregiver
Cindy Tofthagen

Chapter 15. Dementia

 Rhoda MacRae, Margaret Brown, Debbie Tolson

Chapter 16. Heart Failure 
Alexandra Hodson 

Chapter 17. Older Adults with Cancer
Schroder Sattar

Chapter 18. Long Term Care
Genevieve Thompson, Shelley Peacock

Chapter 19. Prisons  
 Meridith Burles, Cindy Peternelj-Taylor

Chapter 20. Pediatric Home Care
Jill Bally, Nicole Smith

Chapter 23. Looking ahead
Lorraine Holtslander, Shelley Peacock

O autorze

Lorraine Holtslander, RN, PhD, CHPCN(c) is a Professor in the College of Nursing at the University of Saskatchewan. Her clinical practice is in Palliative Home Care while the focus of her research is palliative care, grief and loss, and supporting family caregivers during bereavement.

Shelley Peacock, RN, PhD is an Associate Professor with the College of Nursing, University of Saskatchewan in Saskatoon, Canada.  Her clinical and research experience has been with older adults and their family carers; her current focus is within the context of dementia care and the experience of end-of-life care and bereavement.

Jill Bally, RN, PhD is an Associate Professor in the College of Nursing, University of Saskatchewan. Her clinical practice and research is focused on the experiences of families of infants, children, and adolescents who are impacted by life limiting and life threatening illness.

Blurb

This book provides an unique resource for registered nurses working in hospice palliative care at home and for the community, outside of acute care settings and also incorporates literature related to palliative care in acute health care settings, as part of the overall services and supports required. Very few resources exist which specifically address hospice palliative care in the home setting, despite the fact that most palliative care occurs outside acute care settings and is primarily supported by unpaid family caregivers. An overview of the concerns for individuals and families, as well as specific nursing interventions, from all ages would be an excellent support for nursing students and practicing registered nurses alike.

The book structure begins with a description of the goals and objectives of hospice palliative care and the nursing role in providing excellent supportive care. Chapters include research findings and specifically research completed by the authors in the areas of pediatric palliative care, palliative care for those with dementia, and the needs of family caregivers in bereavement. Interventions developed by the editors are provided in this book, such as the “Finding Balance Intervention” for bereaved caregivers; the “Reclaiming Yourself” tool for bereaved spouses of partners with dementia; and The Keeping Hope Possible Toolkit for families of children with life threatening and life limiting illnesses.  The development and application of these theory-based interventions are also highlighted. Videos and vignettes written by family caregivers about what was helpful for them, provide a patient-and family-centered approach.