Genetic Counseling: Ethical Challenges and Consequences

ISBN-13: 9780202363998 / Angielski / Miękka / 2010 / 340 str.

Dianne M. Bartels; Dianne Bartels; Arthur Caplan

Opis

Genetic counseling is fairly new. The fact that the field is an accepted professional enterprise in universities, clinics, and hospitals throughout the United States is remarkable. The contributors argue that genetics and medicine rest on beliefs widely held in American society. Scientific progress is good, and highly sophisticated technologies are appropriate means to solving medical problems. The better understanding they gain about the nature and evolution of disease, the more prepared clinicians will be to treat and prevent future occurrence of disease. A belief that medicine, including genetic medicine, is clear, factually based, and objective undergirds the strategies and norms of genetic counseling. This collection of original papers explores the history, values, and norms of that process, with focus on the value of non-directiveness in counseling practice. The contributors' examination of genetic counseling issues serves as a foundation from which to address the ethical, legal, and policy considerations of clinical genetics.

Spis treści

I: Evolution of Genetic Counseling; 1: Genetic Counseling: Values That Have Mattered; 2: The Training of Genetic Counselors: Origins of a Psychosocial Model; 3: The Workplace Ideology of Genetic Counselors; 4: When Theory Meets Practice: Challenges to the Field of Genetic Counseling; II: Social and Policy Issues in Genetic Counseling; 5: Risk and the Ethics of Genetic Choice; 6: Discrimination Issues and Genetic Screening; 7: Role of Public Policy in Genetic Screening and Counseling; 8: Parables; III: Future Directions and Ethical Challenges in; 9: Genetic Counseling; 10: The Evolution of Nondirectiveness in Genetic Counseling and Implications of the Human Genome Project; 11: Objectivity, Value Neutrality, and Nondirectiveness in Genetic Counseling; 12: Ethical Obligations of Genetic Counselors; 13: Neutrality Is Not Morality: The Ethics of Genetic Counseling; IV: Appendix

O autorze

Dianne M. Bartels, Bonnie S. LeRoy, Arthur L. Caplan