Ethical Issues in Pediatric Hematology/Oncology

ISBN-13: 9783030226831 / Angielski / Twarda / 2019 / 229 str.

Kate A. Mazur; Stacey Berg

Spis treści

I. Introduction to Ethics in Pediatrics 

1. Ethical Principles in the Practice of Medicine / Review of Laws and Regulations

Perry Ann Reed, Tessy Thomas

II. The Ethics of Everyday Clinical Encounters

2. Communicating Prognosis at Diagnosis and Relapse or Progression 

Brittani K. Seynnaeve, Scott H. Maurer, Robert M Arnold

3. Managing Conflict When There’s Disagreement in Care Between Medical Providers, Caregivers, and/or Patient

Ernest Frugé, Michael Sprehe, Laura Loftis, Melody Brown-Hellsten, Courtenay Bruce

4. Unique Considerations for Adolescents and Young Adults 

Deena Levine, Liza-Marie Johnson 

III. Ethical Issues Surrounding Children in Research

5. Ethical Principles in the Practice of Medicine 

Ryan R. Nash, Mark J. Wells 

6. Ethics in Genetic and Genomic Research 

Amy L. McGuire, Stacey Pereira, Amanda Gutierrez, Mary Majumder

 

7. When Cure is not the Goal: Ethical Issues Surrounding Early Phase Research  

Bryan Sisk, Eric Kodish

8. Advance Care Planning 

Allison Caldwell, Melody J. Cunningham, Justin N. Baker

9. Symptom Assessment and Management across the Cancer Trajectory

Melody Hellsten

10. Intercultural Competence and Communication Over Language Barriers 

Pernilla Pergert, Elisabet Tiselius

O autorze

Kate A. Mazur, MSN, RN, CPNP

Texas Children’s Hospital

Texas Children’s Cancer and Hematology Centers  

Baylor College of Medicine 

Houston, TX 

USA

Stacey L. Berg, MD

Texas Children’s Hospital

Texas Children’s Cancer and Hematology Centers  

Baylor College of Medicine 

Houston, TX 

USA

Blurb

This book identifies the various ethical challenges that arise in pediatric hematology/oncology and provides the necessary tools to overcome these challenges. Aiming to expand upon and strengthen providers’ knowledge and experience in pediatric health care ethical issues, the text positions providers to be beneficial resources to faculty, staff, patients, and families within their institution. It presents a multidisciplinary approach to sound ethical practices that is necessary to effectively care for these patients and their families. The book reviews the principles of ethical decision-making, the unique difficulties in using children as research subjects, common ethical conundrums involved in providing end-of-life care, and general moralities of professional practice. 

Written by experts in their fields, Ethical Issues in Pediatric Hematology/Oncology is an innovative and valuable resource for clinicians, practitioners, and trainees who work in the field of pediatric hematology/oncology.