Equitable Research Partnerships: A Global Code of Conduct to Counter Ethics Dumping

ISBN-13: 9783030157449 / Angielski / Miękka / 2019 / 122 str.

Doris Schroeder; Kate Chatfield; Michelle Singh

Spis treści

Table of Contents

Foreword

Reference

Acknowledgements

References

Abbreviations

Author Biographies

Chapter 1: Ethics Dumping and the Need for a Global Code of Conduct        

References

Chapter 2: A Value-Based Global Code of Conduct to Counter Ethics Dumping

Fairness

Respect

Care

Honesty

Chapter 3: The Four Values Framework: Fairness, Respect, Care and Honesty

Introduction

The Meaning of “Value”

What Can Guide Moral Action?

Values and Their Motivating Power

From Values to Action 

The Four Values

Fairness

Respect          

Care

Honesty

Conclusion

References

Chapter 4: Respect and a Global Code of Conduct?

Introduction

The Four Values and Moral Relativism

A More Moderate Relativism

Grounding the Global Applicability Thesis of the GCC in a Common Morality

Conclusion

References

Chapter 5: Exploitation Risks in Collaborative International Research

The Nature of Exploitation

Our Method

Our Findings

Fairness

Respect          

Care

Honesty

Conclusion

Serious Poverty

Extreme Differentials in Power

Past History of Colonialism

References

Chapter 6: How the Global Code of Conduct Was Built          

Introduction

Meaningful Consultation with Diverse Stakeholders

Broad Consultation

The Case Study Competition

Meetings and Platforms: Reaching the Right Delegates

External Engagement with Research Policymakers

External Engagement with Research Funders

External Engagement with Researchers

Engagement with Research Participants and Research Communities

Advocate Voices for Animals

External Engagement with Research Ethics Committees

Analysis of Existing Guidelines

Drafting Process

Early Adopters and Conclusion

References

Chapter 7: The San Code of Research Ethics

Introduction

The San of Southern Africa

Institution Building and Supportive NGOs

WIMSA: The Catalyst Institution          

South African San Institute and South African San Council

Leaders of Integrity

Legal Support

Supportive Research Collaborations

Drafting the San Code of Research Ethics

The San Code of Research Ethics

Respect          

Honesty

Justice and Fairness

Care

Process

Conclusion

References

Chapter 8: Good Practice to Counter Ethics Dumping

Introduction

The Values as an Ethical Foundation

Ethical Engagement with Communities

Setting the Research Aims and/or Developing the Research Question

Designing the Study

Implementing the Study          

The Results Phase

Evaluating the Study

Developing an Accessible Complaints Procedure

Factors Affecting Accessibility

The Scope of a Complaints Procedure

A Values-Based Approach to Developing a Complaints Procedure

A Fair Research Contracting Tool

Conclusion

References

Chapter 9: Towards Equitable Research Partnership

References

Appendix

Authors and Sources of Inspiration

 

 

O autorze

Kate Chatfield is deputy director of the Centre for Professional Ethics, University of Central Lancashire, UK. She is a social science researcher and ethicist specializing in global justice, research ethics, animal ethics and responsible innovation.

Roger Chennells works as legal adviser to the South African San Institute (SASI) and is a founder-partner in the human rights law practice Chennells Albertyn, Stellenbosch, established in 1981. Specializing in labour, land, environmental and human rights law, he has also worked for Aboriginal people in Australia.

Peter Herissone-Kelly is senior lecturer in philosophy, University of Central Lancashire, UK. He is a specialist in Kantian ethics as well as bioethics, analytic philosophy of language and metaethics.

Doris Schroeder is director of the Centre for Professional Ethics at the University of Central Lancashire, and professor of moral philosophy at the School of Law, UCLan Cyprus. She is the lead author of the Global Code of Conduct for Research in Resource-Poor Settings.

Michelle Singh is a project officer at the European & Developing Countries Clinical Trials Partnership (EDCTP) in Cape Town, South Africa. She holds a medical PhD and previously managed maternal and child health research studies and clinical trials at the South African Medical Research Council.