End of Life Care in Neurological Disease

ISBN-13: 9781447160106 / Angielski / Miękka / 2014 / 238 str.

David Oliver

Opis

As end of life care is extended to more and more people it is increasingly important that people with progressive neurological disease are recognised as having particular issues as their disease progresses. This group of people with advancing motor neurone disease, multiple sclerosis, Parkinson's disease, multiple systems atrophy, progressive supranuclear palsy, Huntington's disease and other progressive neurological disease face increasing problems - with physical symptoms and psychosocial and spiritual issues for both themselves and their families and carers. This book encourages health and social care professionals to become closely involved in the care of these people and their families, so that advance care plans can be started and quality of life maintained. This book addresses the principles and practice of developing end of life care strategies for neurological disease, written with a clinical, multidisciplinary focus and illustrated with detailed case studies.

Recenzje

From the reviews:

"This book grew out of the report on a UK meeting of health and social care professionals, together with representative patient organisations, convened to discuss the needs of people with progressive neurological disease. ... This book represents a lot of work and consideration, cataloguing the needs of these patients and their carers and working out how those needs can be best met." (Roger Woodruff, Newsletter IAHPC book reviews, hospicecare.com, Vol. 14 (11), November, 2013)

Spis treści

1. End of Life Care.- 2. End of life care in neurological disease.- 3. Communication.- 4. Physical Symptoms – Assessment Management.- 5. Holistic Care – Psychosocial and Spiritual Aspects.- 6. Coordination of Care.- 7. Advance Care Planning.- 8. Care at the end of life.- 9. Carers.- 10. Future Developments in Care.- 11. International Aspects of Care: Australia.- 12. International Aspects of Care: Europe.- 13. International Aspects of Care: Africa.- 14. Conclusion.

O autorze

Dr David Oliver is Medical Director and Consultant Physician in Palliative Medicine at the Wisdom Hospice in Rochester, Kent and Honorary Reader in Palliative Medicine at the Centre for Professional Practice at the University of Kent, where he is Director of Studies for the MSc in Supportive and Palliative Care. He is a Visiting Professor at the School of Medicine at the University of Zagreb in Croatia.

Blurb

People with advancing neurological disease face increasing physical symptoms, along with psychosocial and spiritual issues affecting both themselves and their families and carers.  There is increasing awareness that the end of life in neurological disease can be anticipated and recognised, taking into account certain key features of disease progression, and the associated issues can be addressed. The individual can prepare for future changes in their health, and be in a stronger position to influence or direct the care they receive.

 

End of Life Care in Neurological Disease encourages health and social care professionals to become closely involved in the care of these people and their families, to maintain and maximise quality of life and plan ahead. This book addresses the principles and practice of end of life care for neurological disease, is written with a clinical, multidisciplinary focus, and is enriched with detailed case studies.

 

This book is an accessible text for the multidisciplinary team in specialist palliative care, and will also be of interest to healthcare professionals in neurological services, including neurologists and neurology specialist nurses, rehabilitation services, general practitioners and community nurses. As care professionals, we are in a powerful position to help those who are living with advanced neurological disease and improve their quality of life and death.