Culture, Kinship and Genes: Towards Cross-Cultural Genetics

ISBN-13: 9781349258840 / Angielski / Miękka / 1997 / 272 str.

E. Parsons; A. Clarke

Opis

The first comprehensive attempt to explore the issues raised by genetic counselling across cultures. It will be of interest to health professionals and to students and lecturers in the social, behavioural and political sciences and in genetics, medicine and nursing. The meaning and relevance of kinship and ethnicity in the context of genetic disease, cultural issues that have arisen in practice, including the influence of the lay public's beliefs about inheritance and the wider social and political context of genetics and genetic disease are all explored in depth.

Recenzje

'...the book offers a fresh approach and should be welcomed by social scientists, service providers and anyone with a practical interest in the social and cultural implications of genetic counselling.' - Sociology of Health and Illness

'...This book...is an exploratory investigation of the role of cultural factors in genetic counselling...The volume will be of interest to clinicians, students and lecturers in both the social and medical sciences, including those who are exploring the links between the culture of science and the science of culture.' - Alison Shaw

Spis treści

Preface - Acknowledgements - Introduction; A.Clarke - PART 1: BACKGROUND - Kinship and Medical Genetics; B.Modell - The Work of Culture; M.Strathern - What is an Ethnic Group?; H.MacBeth - What is an Ethnic Group; U.Sharma - PART 2: GENETIC DISEASE IN CONTEXT - Consanguineous Marriage and Genetics; A.Darr - Factors associated with Birth Outcome in Bradford Pakistanis; S.Proctor & I.Smith - The Relevance of Cultural Understanding to Clinical Genetic Practice; N.Quereshi - Women's Experiences of Screening in Pregnancy; J.Green & M.France-Dawson - Coping with the Sickle Cell Gene in Africa; O.Akinyanju - Cultural Influences on the Perception of Genetic Disorders in the Black Population of Southern Africa; J.Kromberg & T.Jenkins - The Role of Unconscious Fantasy in the Giving and Receiving of Genetic Counselling; G.Karbani, S.Godsill & B.Mueller - PART 3: INHERITANCE - Everyday Ideas of Inheritance and Health in Britain: Implications for Predictive Genetic Testing; C.Davison - Lay Knowledge about Inheritance; M.Richards - PART 4: SOCIAL AND POLITICAL ISSUES - 'Once you have a hammer, everything looks like a nail'; P.Spallone - Learning Difficulties and the Guardians of the Gene; C.Goodey - Gamete Donation and the Management of Difference; F.Price - About Genetics; M.Stacey - Culture and Genetics; E.Parsons

O autorze

ANGUS CLARKE is Reader in Clinical Genetics in the Institute of Medical Genetics at the University of Wales College of Medicine in Cardiff. He worked in paediatrics for several years and this led him to develop an interest in inherited disorders that affect children. He has studied some of the social and ethical implications of genetic testing, and was chair of the Clinical Genetics Society Working Party on the genetic testing of children. He has edited a book on the ethical and social aspects of genetic counselling Genetic Counselling: Practice and Principles.

EVELYN PARSONS, a medical sociologist, is Senior Lecturer in the School of Nursing Studies and Research Fellow in the Institute of Medical Genetics at the University of Wales College of Medicine in Cardiff. Her publications include papers on the social construction of genetic risk, the psychosocial implications of presymtomatic testing, and the experience of scientists involved in cloning the gene for myotonic dystrophy. Her current research is in newborn screening and familial breast cancer.