Community Genetics and Genetic Alliances: Eugenics, Carrier Testing, and Networks of Risk

ISBN-13: 9780415534123 / Angielski / Miękka / 2012 / 208 str.

Aviad E. Raz

Opis

The social and bioethical aspects of carrier testing and its assimilation by specific groups are examined through several qualitative case studies in traditional (religious, ethnic) as well as modern (secular-consumerist) communities in Israel and the U.S.

Spis treści

Introduction: Carrier Testing, Eugenics, and Networks of Risk  1. What is Community Genetics? Definitions and Debates  2. Carrier Matching and Collective Socialisation: Dor Yesharim and the Reinforcement of Stigma  3. Reproductive Carrier Testing Between Orthodoxy and Change  4. The Medicalisation of Cousin Marriage: Carrier Testing in a Muslim Community  5. Genetic Alliances: The Dilemma of Care and Prevention  6. Scientific, Communal and Lay Interpretations and Communicative Gaps Regarding Carrier Testing Conclusion: In Search of Moral Models

O autorze

Aviad E. Raz is Professor of Organizational and Medical Sociology, Ben-Gurion University of the Negev, Beer-Sheva, Israel, where he is also directing the Behavioural Sciences Program. He has published on the subject of organisational culture, as well as on the social and bioethical aspects of health organisations, especially in the context of community genetics.