Children with Special Needs: An Overview of Knowledge on Disability

ISBN-13: 9783031285127 / Angielski

Ulrika Hallberg; Gunilla Klingberg

Opis

There can be a lack of understanding of the vulnerable situation of children with disabilities and their families, even among professional caregivers whose mission is to protect the health and wellbeing of these children. Their respectful treatment should include knowledge, empathy, humanity, and an open and sympathetic dialogue. This book provides an overview of knowledge and literature review of children and adolescents with special care needs that contribute to the respect and understanding of children with disabilities and their families. It also explains possible reasons for different outcomes in research studies and why there is a lack of knowledge in some areas concerning these children. 

Research on children with disabilities is considerable but often can be difficult to access on many levels, which means it does not always benefit those who need this knowledge. This compact book addresses this by presenting the international research in the field in an understandable way for people who work with children with disabilities and their families. The authors provide a broad picture of the background, reality of life, opportunities for professional help and support, as well as outlook of these children and families. Among the topics covered:

• The Health and Well-being of Children with Disabilities
• The Health and Well-being of Relatives
• Occupation
• On the Road to Adulthood

Children with Special Needs: An Overview of Knowledge on Disability is pertinent reading for students in all areas of health care (including nursing and psychology), social work, sociology, and education aimed at children and young people. The text also would be of interest to those who practice in these areas and/or encounter children with disabilities in their daily work.

Spis treści

BACKGROUND
Summary

Introduction

Definitions and prevalence

Previous research
Stress and treatment

References

 

THE HEALTH AND WELL-BEING OF CHILDREN WITH DISABILITIES
Summary

Case

Physical health of children with disabilities
Family-Oriented Care
Orofacial health of children with disabilities
Mental health / illness in children with disabilities

References

 

THE HEALTH AND WELL-BEING OF RELATIVES
Summary

Case
Parents
Siblings
Grandparents

References

 

OCCUPATION

Summary

Case

School and education
Recreation for Children with Disabilities
Relief, support, and assistance

References

ON THE ROAD TO ADULTHOOD
Summary

Case

Attachment and psychosocial development
Transition
Inclusion, exclusion, and risk behaviors

References

WHEN SOMETHING HAPPENS
Summary

Case

Neglect and abuse
Deaths
References

O autorze

Ulrika Hallberg, DrPH is an associate professor of public health at Malmö University, Faculty of Odontology, Department of Pediatric Dentistry. Ulrika is in essence a sociologist and received her doctorate in public health in 2003. She also works as a teaching material writer and has written several textbooks mainly about disabilities and mental illness. During the 1990s Ulrika trained as a social worker but has since her degree worked exclusively with research. Since the end of the 1990s, Ulrika has devoted herself to research and supervision in various aspects of functional impairments. She has been employed at the Department of Psychology in Gothenburg, the Nordic School of Public Health, Halmstad University, and now Malmö University. Ulrika has mainly used grounded theory in her research on different aspects of living with a disability, as the affected party or as a relative, and various aspects of living with mental illness, and has published many books on different aspects of living with a disability. 

Gunilla Klingberg, DDS, PhD is professor in pediatric dentistry and adviser to the Vice-Chancellor at Malmö University, Sweden. She is also senior consultant and specialist in pediatric dentistry. In research, she has studied children with special needs, their dental and orofacial health and wellbeing, and how the children’s needs are met by the dental health service. She has studied dental fear and anxiety, dental pain, socially vulnerable children, and young people with disabilities and used both quantitative and qualitative research methods. Using qualitative methods, primarily grounded theory, Gunilla, together with other researchers in a series of studies, has investigated how people with different disabilities and their relatives perceive oral health, need for dental care, and how they want to be cared for and treated by dental professionals. Special focus has been on people with rare diagnoses. To gain a broader understanding of oral health in people with disabilities, she has also investigated how healthcare and dental professionals perceive oral health and dental needs in patients with disabilities. Currently, studies using qualitative methods are carried out to study how children experience pain when they need to have teeth extracted, and how dental students and dentists understand and handle pain during dental treatment. Further studies aim to gain understanding about what children and adolescent and their parents or legal guardians experience as needs in dentistry and how they perceive oral health. Through studies of patient perspectives, the research group wants to create a basis for prioritizing both care and future research issues. Gunilla has previously published several scientific papers and textbooks.