Case Studies in Building Equity Through Family Advocacy in Special Education: A Companion Volume to Meeting Families Where They Are

ISBN-13: 9780807765340 / Angielski / Miękka / 2021 / 205 str.

Lydia Ocasio-Stoutenburg; Beth Harry; Alfredo J. Artiles

Spis treści

• Contents (Tentative)
• Introduction
• The Research Process
• A Snapshot of the Families
• Difference, Intersectionality, and Critical Disability Studies (DisCrit)
• Co-Advocacy
• Cases
• 1. Patty: “Even Though She’s His Mom, I Will Never Leave Him”
• Desperately Seeking Support: First Encounters with Professionals and Organizations
• Reasons to Advocate: Minding the Gaps in Every Setting
• A Community That Excludes
• Enacting Advocacy across Multiple Settings
• “People Appeared Out of Nowhere” The Helpers, Supporters and Co-Constructors
• Goals for The Future: “Nobody Does It Like You”
• “Let’s Resolve”: Patty’s Self-Reflections as an Advocate
• Following Up: Observing Patty in Action
• Post-COVID Update
• 2. Jenny: “This is a Family”
• Not Your Typical Medical Foster Home: “This Is a Big Family Setting”
• Views from the Intersection: Disability, Mental Health, Puberty and Transition
• Understanding the Foster Care Linkage: Who are the Allies?
• Nora Revealed: Advocacy and Self-Advocacy in Action
• Post-COVID Frustrations: “It Tore her Apart”
• Reflections of a Caregiver Advocate
• 3. Rhonda: “I Am Her Voice”: Fighting for Respect and a Normalized Adolescence
• “We Just Have to Wait and See”
• High School and Beyond: The IEP—“Just a Piece of Paper”
• Countering Negativity and Poor Communication
• Sisters and Supporters
• Being a Teenager: Creating a Social Life
• Senior Year Advocacy: Let Me Be Brave in My Attempt
• The COVID-19 Pandemic: Virtual Learning as a “Blessing” and a Revelation
• Finding Light at the End of the Tunnel
• Rhonda’s Reflections: The Meaning of Advocacy
• 4. Myra: “I Came With My Books as My Honor and My Weaponry”
• Identity and Disability Intersections
• A “Top-Tier Advocate”
• Advocating for Identification and Services
• An Early Transition
• Advocacy Then and Now: Change within the Status Quo
• 5. Marie: “I Want Him to Have a Voice”
• A Twice-Exceptional Family
• “You Have to Meet this Mom!” Mother Love, Intuition and Seeing the Whole Child
• Enacting Advocacy across Multiple Environments
• “She’s my Backup”: The Supporters, Helpers and Co-Constructors
• The Community Filling in the Gaps
• COVID Follow Up: Restrictions, Racism and “Regular”
• “I’m Not Afraid of Anything”: Reflecting on Her Role as an Advocate
• 6. Ana: “Whatever You Need, I’m On Your Team”
• Social and Cultural Capital: “I Know How to Speak to Them”
• Enacting Advocacy: “Autism is an Expensive Disorder”
• Navigating Community and Social Experiences
• Co-Advocacy: Making the Ideal a Reality
• Following up with the Outcomes of Advocacy
• “My Fear Is Coming Out of It”: COVID-19 and Challenges of Social Distancing
• “I Wouldn’t Have it Any Other Way”: Ana’s Self-Reflections as an Advocate
• 7. Linda: “As a Mom, You Have Those Feelings, and You Do What You Have to Do”
• Engaging With Professionals Before and After Delivery: “It Should be More Reassuring”
• Dismissals and Misunderstandings: “Give Him the Diagnosis That Was Appropriate”
• Advocating Within the Family: Acceptance, Compromising, and Support
• Tony’s Emerging Adolescence: Fitting in or Not?
• Enacting Advocacy
• Knowing Who to Lean on: The Allies of Advocacy
• Post-COVID: “We’ve Really Seen Him Flourish, Believe It or Not, in This Time”
• Reflections: “The Next Day is a New Day”
• 8. Sonia and Zoe: “Different Isn’t the End of the World”
• “Hooray, Giselle”!
• Strong Family Bonds, Strong Family Roles
• Advocacy Allies: Helpers and Supporters Who Made a Difference
• Different Contexts, Different Advocates: The Power of Social Perceptions
• Observation: “There’s No Place Like That Place”
• COVID Follow-Up: “We Got to Do Better”
• Advocacy Reflections
• 9. Carlos and Betty: “It’s Not About Me . . . It’s About Someone Who Needs Me”
• Advocating Before Birth: “He’s Our Son, Of Course We Are Keeping Him”
• Identity, Culture and Disability: A Family Perspective
• Advocating within the Family: Intersections of Disability, Culture, and Socio-Economic Status
• Unexpected Exclusions within the Disability Community
• Allies of Advocacy: “Building Community”
• Observation: “Since I know Him Better Than They Do”
• COVID-19 and Updates
• Advocacy Reflections
• 10. Althea: “We Are Warriors in Ourselves”
• Intersections and Perceptions: Family, Identity and Disability
• First Encounters with Professionals: Dismissal without Diagnosis
• Advocating Across Contexts: Disability and Susceptibility
• Allies of Advocacy
• Returning to the Observation
• COVID-19 and Follow Up
• Speech: “I Had to Make A Stand”
• Advocacy Reflections: “There’s No Voice!”
• 11. Specializing in Human Beings
• What Do Parents Want? Value and Opportunity
• What Makes a Great Advocate?
• What Do Families Need for Their Advocacy to Be Effective? Reciprocity and Equity
• Realistic Expectations But Hope for the Future
• References
• Index
• About the Authors