Chapter 2. A History of Social Science Ethics and Regulations in the US
Introduction
The Evolution of Medical Research Ethics
Developing US Biomedical and Social Science Research Ethics
Revising the Common Rule (45 CFR 46) 1995-2018
Conclusions
References
Chapter 3. IRBs and Police Power: The Intersection of Law and Ethics
Introduction
Folkways, Mores and Laws
Police Power
Limiting IRB Excesses
Conclusions
Acknowledgements
References
Part 2 Case Studies
Chapter 4. The US Public Health Tuskegee Syphilis Study: A Sociological Perspective
Introduction
Background and Context of Syphilis Study
The USPHS Tuskegee Longitudinal Study
The Exposé
After the Exposé
Discussion and Conclusions
Acknowledgements
References
Chapter 5. The Wichita Jury Study: Violating a Sacred Trust
Introduction
The Chicago Jury Project
The Scandal
Subsequent Studies
Discussion and Conclusions
Acknowledgements
References
Chapter 6. Obedience to Authority: A Whirlwind of Controversy
Introduction
Background
The Controversy
Non-Laboratory Replications
Discussion and Conclusions
Acknowledgements
References
Chapter 7. Tearoom Trade: The Ethics of Studying Social Problems
Introduction
Study Background and Description
The Ethics Controversy
Related Participant Observations of the Period
Humphreys’ Impact on Ethics
Discussion and Conclusion
References
Chapter 8. The Stanford Prison Experiment: The Power of the Situation
Introduction
Preliminary Experiments
From Application through Prisoner Rebellion
Who’s Who in the Experiment
Discussion and Conclusion
Acknowledgements
References
Chapter 9. The Yanomami: A Case of Retrospective Ethics
Introduction
Napoleon Chagnon
The Acrimonious Debate
Ethical Issues
Conclusion
Acknowledgement
References
Index
Harry Perlstadt, Ph.D., M.P.H., is Professor Emeritus of Sociology, Michigan State University and served for five years as Director of the MSU Bioethics, Humanities, and Society Program. He has worked on evaluations of community health delivery for the W.K. Kellogg Foundation, safe and drug-free school curricula for the Michigan Department of Community Health, and national environmental health polices and action plans in Europe for the World Health Organization/Europe. He is active in the American Public Health Association having served on its Science Board and represented the Ethics Section on its Governing Council. His publications include chapters on applied sociology in 21st Century Sociology: A Reference Handbook, Ethics and Values in Sociological Practice in Doing Sociology: Case Studies in Sociological Practice, and The Healthy Cities/Communities Movement in Community Intervention: Clinical Sociology Perspectives. He has published articles on Milgram’s Obedience to Authority and Zimbardo’s Stanford Prison Experiments. He received the American Sociological Association’s 2014 Distinguished Career Award for the Practice of Sociology.
This book discusses the development of key issues in research ethics relevant for clinical sociologists, concerning client rights to confidentiality, privacy, and informed consent. It describes the US human research protection system used by clinical and applied sociologists, through a history of research ethics, including the landmark Belmont Report and the creation of the regulatory structure of Institutional Review Boards (IRBs) in the United States. It also discusses ethical research systems in other nations like Canada, the UK, Australia and New Zealand. The book provides a comprehensive account of controversial studies in the US, including Milgram’s Obedience to Authority, Zimbardo’s Stanford Prison Experiment, and the US Public Health Service, and the Tuskegee Syphilis Study, and analyzes how ethical concerns in these studies were or were not resolved.
This book covers a topic of core interest to clinical and applied sociologists and other social science practitioners who do research, as well as students and teachers in research ethics courses in anthropology, psychology, political science, sociology, and philosophy, thereby broadening an awareness of clinical sociology.