ISBN-13: 9780192632357 / Angielski / Miękka / 2001 / 288 str.
Helen House - the first hospice for children in the UK - opened in Oxford in 1982 and has acted as a model for the establishment of respite and terminal hospice care for children ever since. This author of this book describes how the sudden illness of her daughter, Helen, was to lead to the idea of a small and homely hospice for children, providing respite and terminal care together with practical support for families. The text records the events surrounding the foundation of the hospice and sets out the philosophy behind the venture. It describes the operational framework and details the services provided at Helen House which are now cited as a model for children's hospice care worldwide.