Coping with Crisis and Handicap

ISBN-13: 9781461332336 / Angielski / Miękka / 2011 / 358 str.

Aubrey Milunsky

Opis

For over 20 years I have accepted the challenge and had the privilege of caring for sick children, agonizing with their parents during periods of serious illness, which were sometimes fatal. Because of my particular interest in and concern about birth defects and genetic disease, many of these children had severe disabling handicaps, which were often genetic and included mental retardation. Hence care of these children and their families was often complicated by the presence of serious or profound genetic defects. The initial realization of the nature of the disorder invariably led to emotional . difficulties and inevitably later spawned chronic distress. For some children inexorable deterioration led to untimely deaths, while the parents agonized over their handi- capped, chronically ill, or defective-but nevertheless loved---

Spis treści

1 · The Child Dying in the Hospital.- Discussion.- 2 · Care of the Dying Child at Home.- Discussion.- 3 · The Bereaved Parent.- Discussion.- 4 · Where Was God? The Legitimacy of Religious Anger.- Discussion.- 5 · The Clergyman’s Role in Grief Counseling.- 6 · Care in Chronic Fatal Genetic Disease.- Discussion (papers of Grollman and Milunsky).- 7 · Explaining Death to Children.- 8 · Coping with Suicide in the Family.- Discussion.- 9 · Treating the Person Confronting Death.- 10 · Ethics and the Care of the Child with Terminal Illness.- Discussion.- 11 · Kids Are People Too, Sometimes: Parents vs. Children.- Discussion.- 12 · Coping with Handicap: Searching for the Boundaries.- Discussion.- 13 · Helping Parents Cope with a Profoundly Mentally Retarded Child.- 14 · The Involvement of Siblings of Children with Handicaps.- Discussion (papers of Challela and Crocker).- 15 · Reaching Autistic Children: Strategies for Parents and Helping Professionals.- Discussion.- 16 · Coping with Sexuality and Sexual Vulnerability in Developmentally Disabled Individuals.- Discussion.- 17 · A Little Bit of Awkward: Children and Their Disabled Peers.- 18 · Teaching Teachers to Cope.- 19 · Coping Strategies of Children and Their Families.- Discussion (papers of Brightman, O’Connor, and Cahners).- 20 · Law and the Handicapped.- 21 · Societal Perspectives: Where Do We Go from Here?.- Discussion (papers of Beyer and Dybwad).- Selected Recent Bibliography.- Children and Death, Books, Chapters, Television Programs (1973–1978).- Children and Death, Journal Articles (1973–1978).- Handicap and Bioethics, Books (1973–1978).- Handicap and Bioethics, Journal Articles (1973–1978).- Death, Suicide, and Chronic Illness, Journal Articles (1972–1979).- Autism and Burns, Journal Articles (1974–1979).