"The Gift Of Experience": Excerpts from conversations with 21 Men With hemophilia and their caregivers

ISBN-13: 9780980240528 / Angielski / Miękka / 2010 / 304 str.

Laura Gray; Christine Chamberlain

Opis

"The Gift of Experience" captures the lives and perspectives of twenty-one men, born with hemophilia, and their caregivers, in ways that other resources have failed to do. In vital and personal stories, these individuals speak about the experience of coping with hemophilia. Their accounts capture the impact of the dramatic advances in the treatment of the disease as well as the challenges of chronic pain, joint damage and HIV and hepatitis C infection resulting from the tainted blood supply between the late 1960s and the mid-1980s." Laura Gray and Christine Chamberlain have done a tremendous job weaving these oral histories into a narrative that allows their subjects to speak for themselves. "The Gift of Experience" is a 'must read' for anyone interested in the illness and disability experiences of people with chronic diseases as well as those with bleeding disorders. "The Gift of Experience" is moving and inspiring, a hopeful account of the human experience.