Down Syndrome: Visions for the 21st Century

ISBN-13: 9780471418153 / Angielski / Miękka / 2002 / 496 str.

William I. Cohen; Lynn Nadel; Myra E. Madnick

Opis

Providing a comprehensive survey of the clinical, educational, developmental, psychosocial, and transitional issues relevant to people with Down syndrome, this book addresses the needs of family members, caregivers, and professionals alike. Edited in association with the National Down Syndrome Society, this up-to-date treatment incorporates the newest developments concerning sexuality, inclusion, transition into adulthood, and legislation, as well as a discussion of the Human Genome Project and the sequencing of chromosome 21.

Recenzje

"This volume is a comprehensive collection of articles representing a wide range of disciplines it will be a valuable addition to the bookshelves of families, medical staff, educators, and researchers." ( American Journal of Medical Genetics, August 15, 2004)

...a comprehensive compilation of the myriad issues facing individuals with Down syndrome and their families across the lifespan...this book, compared to other tomes of highlights from various conferences, seems to contain more bang for the buck as the issues it covers are extremely pertinent and could stand alone apart from the conferences...this book will stay on my shelf. (Journal of Genetic Counseling, Vol. 13, No. 1, February 2004)

"This book will be of great interest to anyone wanting to have the latest information about this genetic disorder..." (family2000.org.uk, 9 September 2002)

"...puts foward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health)

"...puts forward some of the visions and thoughts in an optimistic way and is therefore recommended..." (Int Jnl of Adolescent Medical Health, Vol.15, No.1, 2003)

"I...consider a copy of this book a must for every institutional and personal library." (Journal of the National Medical Association, March 2003)

"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)

"...exceedingly valuable for a wide spectrum of individuals: parents, professionals, caregivers, and researchers..." (American Journal of Human Genetics, Vol. 72, 2003)

"...a terrific compendium of the wide array of topics...whatever the challenges that lie ahead...we are much better prepared by the information and vision provided by this excellent book." (Archives of Pediatrics and Adolescent Medicine, May 2003)

"...a useful reference tool for families and service providers." (Human Genetics, No.113, 2003)

Spis treści

Self–Determination.

Self–Advocacy.

Advocacy.

Role of the Family.

Health and Clinical Care.

Research.

Psycho–Social Issues.

Education/Inclusion.

Communication, Math and Language Skills.

Turning the Vision into Reality.

Blurb

More than 350,000 individuals in the United States alone are affected by Down syndrome, a genetic disorder related to the presence of an extra copy of chromosome 21. Down Syndrome: Visions for the 21st Century is designed to provide a comprehensive and up–to–date treatment of the current issues of self–determination, education, and advocacy, as well as the most recent research developments.

Providing a comprehensive survey of the clinical, educational, developmental, psychosocial, and transitional issues relevant to people with Down syndrome, the book is structured to meet the needs of parents and professionals alike. The controversial topics of alternative and nonconventional therapies are included alongside the best practices of top experts in the fields of family support, supported living, and life in the community. Down Syndrome incorporates the newest developments concerning issues of sexuality, inclusion, transition into adulthood, and legislation and features a discussion of the implications of the Human Genome Project and the sequencing of chromosome 21. The book comprises ten chapters covering:
∗ Self–Determination
∗ Self–Advocacy
∗ Advocacy
∗ Role of the Family
∗ Health and Clinical Care
∗ Research
∗ Psychosocial Issues
∗ Education/Inclusion
∗ Communication, Math, and Language Skills
∗ Turning the Vision into Reality

Down Syndrome: Visions for the 21st Century assumes the stated mission of the National Down Syndrome Society: to ensure that all individuals with Down syndrome are provided the opportunity to achieve their potential in community life. Parents, family members, individuals with Down syndrome, advocates, educators, and physicians will benefit from this peerless guide.