Biobanks: Governance in Comparative Perspective

ISBN-13: 9780415427388 / Angielski / Miękka / 2008 / 234 str.

Herbert Gottweis

Opis

Explains that biobanks are a phenomenon that cannot be disconnected from considerations of power, politics and the reshaping of practices in governance.

Spis treści

Part 1: Conceptualising biobanks  1. Biobanks and governance: an introduction  2. Biobanks in action: new strategies in the governance of life  Part 2: How to build a biobank: comparing different approaches  3. The rise and fall of a biobank: the case of Iceland  4. Estonia: ups and downs of a biobank project  5. Patient organizations as the (un)usual suspects: the biobanking activities of the Association Française contre les Myopathies and its Généthon DNA and Cell Bank  6. ‘This is not a national biobank…’: the politics of local biobanks in Germany  7. Governing DNA: prospects and problems in the proposed large United States population cohort  8. Governance by stealth: large-scale pharmacogenomics and biobanking in Japan  Part 3: Biobanks, publics, and citizenship  9. UK Biobank: bioethics as a technology of governance  10. Biobanks and the biopolitics of inclusion and representation  11. The informed consenters: governing biobanks in Scandinavia  12. Framing consent: the politics of ‘engagement’ in an Australian biobank project  13. Governing through biobanks: Research populations in Israel