Children as Research Subjects: Science, Ethics, and Law

ISBN-13: 9780195071030 / Angielski / Twarda / 1994 / 272 str.

Michael A. Grodin; Leonard E. Glantz; Leonard H. Glantz

Opis

Is using children as research subjects ever justified? Are there limits to such use? Does the fact that children are medically and psychosocially different from adults have implications for research? What can we learn from the history of the use and abuse of children as research subjects? Do parents have the authority to volunteer their children for research projects? How should children participate in the decision to be involved in research? How should research risks be assessed and balanced?
These perplexing questions and others are addressed by a distinguished group of experts in the field of biomedical and behavioral research with children. This book adopts an integrated multidisciplinary approach which uses science, ethics, and law as guides for exploring these most difficult issues. The tension between acquiring important new knowledge and fulfilling the obligation to protect children from exploitation and harm is a recurring theme.
As the first book to be devoted solely to the science, ethics, and law of research with children, it is an indispensable resource to physicians, psychologists, educators, lawyers, ethicists, Institutional Review Board members, child advocates and others involved in performing or reviewing research with children.

Recenzje

both a timely and welcome book ... The timeliness of this book can not be overstated. What it clearly points to is the need for the establishment of clear ethical guidelines governing what will undoubtedly become, if it has not done so already, a growth area in research terms - the lives and experiences of our children. Grodin and Glantz are to be congratulated on providing us with a book that is both informative and at the same time challenging and thought provoking. Given the general nature of the issues addressed, it should be read by researchers of all disiplines. At a time when the advocacy of rights for our children is high on the political agenda, it will also have a wider appeal.